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Progeria: First black child with rare aging disease

Posted by on Sep. 14, 2011 at 1:13 PM
  • 6 Replies

Progeria: First black child with rare aging disease

Most kids are in a hurry to grow up. But for 12-year-old South African Ontlametse Phalatse, growing older is not a choice. This small girl with a big personality is one of only 80 children in the world diagnosed with progeria, a premature aging condition. She's also the first black child with the fatal genetic condition.

"I call myself a first lady because I'm the first black child with this disease ... Which other black child do you know with this disease?" she told the Associated Press.

Children with progeria are born looking healthy, but soon display characteristics of accelerated aging, such as failure to grow, stiff joints and loss of body fat and hair. What's it like to live with progeria? Keep clicking for an inside look at Ontlametse's life...

by on Sep. 14, 2011 at 1:13 PM
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Replies (1-6):
Peanutx3
by Ruby Member on Sep. 14, 2011 at 1:20 PM

Such strength in a young girl.

celestegood
by Silver Member on Sep. 14, 2011 at 1:21 PM

I watched a tv show about a little girl with this.  Apparently, they age so fast that by the time they are 8 years old, they have the body of an 70-80 year old. 

It's incredibly sad.  Here's a link to Hayley who has this as well, and she and her family organize a progeria family reunion every year:

http://hayleyspage.com/

lovinangels
by on Sep. 14, 2011 at 1:21 PM

OH!  big shock, I'm on cafemom and I'm crying again.

.shank.
by Member on Sep. 14, 2011 at 1:22 PM
Poor little one :( I hope, what life she does have, is lived happily and filled with love.
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Peanutx3
by Ruby Member on Sep. 14, 2011 at 1:23 PM

Sorry Lovin.  Didn't mean to make you cry.

rfurlongg
by on Sep. 14, 2011 at 1:23 PM
Such a horrible disease. I with there same way to cure these children.

That little girl is amazing!! I'd love to spend some with her.
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