VEPTR awareness... could use some help please
Declare a VEPTR awareness day on Aug 23rd. This is the day that the FDA approved the Titanium Rib.
VEPTR is a life saving concept for the treatment of Thoracic Insufficiency Syndrome. Thoracic Insufficiency Syndrome is the inability of the thorax to support normal respiration or lung growth. It occurs in young children with severe rib and chest wall malformations often associated with scoliosis.
VEPTR is designed to mechanically stabilize and distract the thorax to improve respiration and lung growth. VEPTR devices control and may correct scoliosis and helps patients have room to breathe.
Between 500-600 children and adults are affected by Thorasic Insuffensy and this is their only hope at a longer life. This day is needed to create support for the families as well as the children. Bringing awareness to this could save more lives as it could be more widespread than is known
What are your thoughts on this?
If you think you could get behind helping with this, could you go sign the petition please.