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This is why the courts need to stay out of medical decisions. Girl gets second lung transplant

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Pennsylvania girl gets second lung transplant after first failed

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Reuters

By Francesca Trianni

NEW YORK (Reuters) - A 10-year-old Pennsylvania girl who sparked a national debate about child access to organ donation took her first independent breath this week on a second set of donor lungs after her first transplant failed, the girl's family said on Friday.

Sarah Murnaghan, who had cystic fibrosis and needed a lung transplant, had been kept off an adult organ transplant list due to an age restriction. She became eligible for an adult pair of lungs only after a judge's order.

The girl received the first transplant on June 12 but had to be put back on a waiting list to receive another organ donation after complications arose.

The girl underwent a second surgery, her family said in a statement, performed by the same surgeon who did the first transplant, Dr. Thomas Spray, at Children's Hospital of Philadelphia.

"The road to recovery is long and Sarah's fight is not over," parents Janet and Fran Murnaghan, who live in the Philadelphia suburb of Newtown Square, wrote on Facebook on Friday.

The girl's family had sued to prevent the U.S. Department of Health and Human Services from enforcing a policy that prevents children under 12 from receiving adult lung transplants, even if they are extremely ill.

The girl was set to undergo another surgery on Monday to provide the lungs with greater volume for expansion and remove a tube, the family's statement said.

by on Jun. 28, 2013 at 7:34 PM
Replies (11-20):
lilblu399
by Bronze Member on Jun. 28, 2013 at 9:52 PM
I wonder what happened to the boy who was 11, healthier than her and is at CHOP as well. He was granted to be on the adult list for a week, bet he is still sitting in the hospital with his lungs. I think the news said he'll be 12 in July.
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momtimesx4
by Gold Member on Jun. 28, 2013 at 9:52 PM



Quoting Mipsy:

Where does it stop?!


Well, maybe the 3rd time is the charm

Anonopotamus
by on Jun. 28, 2013 at 9:57 PM
4 moms liked this
It won't ever stop for this girl. I'm so sorry for her condition but that's the truth. Media pressure shouldn't be what procures transplants for people. There is a particular criteria for a reason.
LoveMyKBabies
by on Jun. 28, 2013 at 9:58 PM
2 moms liked this
All I know is no one would want to stick my lungs in their kid, kid would be coughing up tar or something. If my child were in this situation, I'd fight like hell to get them working organs.
romalove
by Roma on Jun. 28, 2013 at 10:00 PM


Quoting T-HoneyLuv:

You know what? If it was any of your children, ALL of you against it would be singing a different tune. And yes this is coming from a parent of a child who will need a life saving organ transplant.

I know why you are saying this.

I don't think I would.

I know too much about the perils of this kind of surgery with children, and how different it would be for an adult to have the transplant.  


TruthSeeker.
by Milami on Jun. 28, 2013 at 10:05 PM
1 mom liked this


Quoting LauraKW:

That kind of pisses me off. But I can't say if it was my child I wouldn't do the same thing her parents did.

 This.

T-HoneyLuv
by on Jun. 28, 2013 at 10:09 PM
You would fight for your child. Transplant is not easy but kids are resillient and they are fighters. They WANT to live and yes, post transplant recovery, the anti-rejection meds and immunosuppressants are horrible but it is not a waste if these children can finally live the life that they so desperately dream of.


Quoting romalove:


Quoting T-HoneyLuv:

You know what? If it was any of your children, ALL of you against it would be singing a different tune. And yes this is coming from a parent of a child who will need a life saving organ transplant.

I know why you are saying this.

I don't think I would.

I know too much about the perils of this kind of surgery with children, and how different it would be for an adult to have the transplant.  



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romalove
by Roma on Jun. 28, 2013 at 10:18 PM
Cf is not cured with a transplant.

Quoting T-HoneyLuv:You would fight for your child. Transplant is not easy but kids are resillient and they are fighters. They WANT to live and yes, post transplant recovery, the anti-rejection meds and immunosuppressants are horrible but it is not a waste if these children can finally live the life that they so desperately dream of.




Quoting romalove:


Quoting T-HoneyLuv:

You know what? If it was any of your children, ALL of you against it would be singing a different tune. And yes this is coming from a parent of a child who will need a life saving organ transplant.

I know why you are saying this.

I don't think I would.

I know too much about the perils of this kind of surgery with children, and how different it would be for an adult to have the transplant.  



prommy
by Silver Member on Jun. 28, 2013 at 10:21 PM


Quoting Mipsy:

Where does it stop?!

When children still dying

T-HoneyLuv
by on Jun. 28, 2013 at 10:23 PM
3 moms liked this
That is true. But, it can give them more quality time. I follow a woman's blog who.is in her 30's who just got her second lung transplant and is doing great. She also gave birth to a child when all the odds were stacked up against her. You cannot give up hope,


Quoting romalove:

Cf is not cured with a transplant.



Quoting T-HoneyLuv:You would fight for your child. Transplant is not easy but kids are resillient and they are fighters. They WANT to live and yes, post transplant recovery, the anti-rejection meds and immunosuppressants are horrible but it is not a waste if these children can finally live the life that they so desperately dream of.









Quoting romalove:


Quoting T-HoneyLuv:

You know what? If it was any of your children, ALL of you against it would be singing a different tune. And yes this is coming from a parent of a child who will need a life saving organ transplant.

I know why you are saying this.

I don't think I would.

I know too much about the perils of this kind of surgery with children, and how different it would be for an adult to have the transplant.  




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