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This is why the courts need to stay out of medical decisions. Girl gets second lung transplant

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Pennsylvania girl gets second lung transplant after first failed

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Reuters

By Francesca Trianni

NEW YORK (Reuters) - A 10-year-old Pennsylvania girl who sparked a national debate about child access to organ donation took her first independent breath this week on a second set of donor lungs after her first transplant failed, the girl's family said on Friday.

Sarah Murnaghan, who had cystic fibrosis and needed a lung transplant, had been kept off an adult organ transplant list due to an age restriction. She became eligible for an adult pair of lungs only after a judge's order.

The girl received the first transplant on June 12 but had to be put back on a waiting list to receive another organ donation after complications arose.

The girl underwent a second surgery, her family said in a statement, performed by the same surgeon who did the first transplant, Dr. Thomas Spray, at Children's Hospital of Philadelphia.

"The road to recovery is long and Sarah's fight is not over," parents Janet and Fran Murnaghan, who live in the Philadelphia suburb of Newtown Square, wrote on Facebook on Friday.

The girl's family had sued to prevent the U.S. Department of Health and Human Services from enforcing a policy that prevents children under 12 from receiving adult lung transplants, even if they are extremely ill.

The girl was set to undergo another surgery on Monday to provide the lungs with greater volume for expansion and remove a tube, the family's statement said.

by on Jun. 28, 2013 at 7:34 PM
Replies (121-123):
T-HoneyLuv
by on Jun. 30, 2013 at 9:20 AM
She needed a lung transplant. There are no other ways to save her. There is a great need and there are not enough organs. That is the problem. Once you die, your organs either go in a garbage can or they give the gift of life to someone in need. Period.


Quoting loveutiltheend:

Actually I'd try to save my child without affecting others in need.




Quoting T-HoneyLuv:

You know what? If it was any of your children, ALL of you against it would be singing a different tune. And yes this is coming from a parent of a child who will need a life saving organ transplant.


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Piskie
by Bronze Member on Jun. 30, 2013 at 9:23 AM
1 mom liked this
They can. The average life expectancy for people with cf is 37..... Many live longer. That's plenty of time for a life.


Quoting finnbar:

This child has cystic fibrosis. This is a genetic disorder which causes thickening of all bodily fluids. This creates problems primarily with digestion and the lungs. It is not cureable. If her body killed her own lungs this fast I very much doubt she will live much longdr on any set of donated lungs




Quoting T-HoneyLuv:

You would fight for your child. Transplant is not easy but kids are resillient and they are fighters. They WANT to live and yes, post transplant recovery, the anti-rejection meds and immunosuppressants are horrible but it is not a waste if these children can finally live the life that they so desperately dream of.






Quoting romalove:


Quoting T-HoneyLuv:

You know what? If it was any of your children, ALL of you against it would be singing a different tune. And yes this is coming from a parent of a child who will need a life saving organ transplant.

I know why you are saying this.

I don't think I would.

I know too much about the perils of this kind of surgery with children, and how different it would be for an adult to have the transplant.  





T-HoneyLuv
by on Jun. 30, 2013 at 9:25 AM
I know what CF is and I also know that your last statement is not true and many cases.


Quoting finnbar:

This child has cystic fibrosis. This is a genetic disorder which causes thickening of all bodily fluids. This creates problems primarily with digestion and the lungs. It is not cureable. If her body killed her own lungs this fast I very much doubt she will live much longdr on any set of donated lungs




Quoting T-HoneyLuv:

You would fight for your child. Transplant is not easy but kids are resillient and they are fighters. They WANT to live and yes, post transplant recovery, the anti-rejection meds and immunosuppressants are horrible but it is not a waste if these children can finally live the life that they so desperately dream of.






Quoting romalove:


Quoting T-HoneyLuv:

You know what? If it was any of your children, ALL of you against it would be singing a different tune. And yes this is coming from a parent of a child who will need a life saving organ transplant.

I know why you are saying this.

I don't think I would.

I know too much about the perils of this kind of surgery with children, and how different it would be for an adult to have the transplant.  





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