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This is why the courts need to stay out of medical decisions. Girl gets second lung transplant

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Pennsylvania girl gets second lung transplant after first failed

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Reuters

By Francesca Trianni

NEW YORK (Reuters) - A 10-year-old Pennsylvania girl who sparked a national debate about child access to organ donation took her first independent breath this week on a second set of donor lungs after her first transplant failed, the girl's family said on Friday.

Sarah Murnaghan, who had cystic fibrosis and needed a lung transplant, had been kept off an adult organ transplant list due to an age restriction. She became eligible for an adult pair of lungs only after a judge's order.

The girl received the first transplant on June 12 but had to be put back on a waiting list to receive another organ donation after complications arose.

The girl underwent a second surgery, her family said in a statement, performed by the same surgeon who did the first transplant, Dr. Thomas Spray, at Children's Hospital of Philadelphia.

"The road to recovery is long and Sarah's fight is not over," parents Janet and Fran Murnaghan, who live in the Philadelphia suburb of Newtown Square, wrote on Facebook on Friday.

The girl's family had sued to prevent the U.S. Department of Health and Human Services from enforcing a policy that prevents children under 12 from receiving adult lung transplants, even if they are extremely ill.

The girl was set to undergo another surgery on Monday to provide the lungs with greater volume for expansion and remove a tube, the family's statement said.

by on Jun. 28, 2013 at 7:34 PM
Replies (31-40):
T-HoneyLuv
by on Jun. 28, 2013 at 11:49 PM
It's not?


Quoting futureshock:


Quoting T-HoneyLuv:

You think it's selfish to give their child a chance to live? I hope you are never faced with a situation such as this.





Quoting Sisteract:

I think it's selfish to put the child through multiple transplants which will not solve her underlying problem. LUNG failure is not the cause of CF, it is a result of CF. Any lungs received will become infected, scarred and eventually fail. So now this child will deal with CF AND the life long consequences associated with transplantation.

The parents did this for THEMSELVES not for her, IMO.

For the religious, why not let this child go home to her creator?



Yeah, that is exactly what she said.

/sarcasm



Posted on CafeMom Mobile
Sisteract
by Whoopie on Jun. 28, 2013 at 11:51 PM
1 mom liked this

Do people know the life expectancy of the average CF patient?

Do people even know what CF is? Most do not.

Without gene therapy, new lungs are nothing beyond a bridge to death-

grandmab125
by Gold Member on Jun. 28, 2013 at 11:51 PM

 From cff.org site:

Once the person has received a lung transplant, does CF "go away"?

Transplanted lungs do not have CF because they come from people who do not have CF. However, after the transplant, the person still has CF in the sinuses, pancreas, intestines, sweat glands and reproductive tract.

The new lungs do not “get” CF, but immunosuppressive drugs may decrease the ability to fight germs like Pseudomonas aeruginosa (Pseudomonas) and Burkholderia cepacia complex (B. cepacia). These germs may stay in the upper airways after a transplant and can infect the new lungs. The risks of infection are highest right after the transplant operation. This is because immunosuppressive drugs are given at the highest doses right after the transplant so the body will not reject the new lungs. These drugs make it hard for the body to fight infections, and this can lead to lung infections.

Quoting romalove:

Cf is not cured with a transplant.

Quoting T-HoneyLuv:You would fight for your child. Transplant is not easy but kids are resillient and they are fighters. They WANT to live and yes, post transplant recovery, the anti-rejection meds and immunosuppressants are horrible but it is not a waste if these children can finally live the life that they so desperately dream of.




Quoting romalove:


Quoting T-HoneyLuv:

You know what? If it was any of your children, ALL of you against it would be singing a different tune. And yes this is coming from a parent of a child who will need a life saving organ transplant.

I know why you are saying this.

I don't think I would.

I know too much about the perils of this kind of surgery with children, and how different it would be for an adult to have the transplant.  

 


 

grandma B

grandmab125
by Gold Member on Jun. 28, 2013 at 11:56 PM
1 mom liked this

 So, you would be just fine watching your child slowly suffocate to death.  OK.  I certainly hope you're children are never deathly ill, because you won't fight for them.

Quoting Sisteract:

I think it's selfish to put the child through multiple transplants which will not solve her underlying problem. LUNG failure is not the cause of CF, it is a result of CF. Any lungs received will become infected, scarred and eventually fail. So now this child will deal with CF AND the life long consequences associated with transplantation.

The parents did this for THEMSELVES not for her, IMO.

For the religious, why not let this child go home to her creator?

 

grandma B

grandmab125
by Gold Member on Jun. 29, 2013 at 12:02 AM
3 moms liked this

 Haven't you learned yet, dear, that there are quite a few cold hearted bitches on CM?

I certainly pray that when your child needs that transplant, that there is an organ available for her/him.  I can't imagine being in your situation.  Here's hoping..

hugsfingers crossed

Quoting T-HoneyLuv:

You think it's selfish to give their child a chance to live? I hope you are never faced with a situation such as this.


Quoting Sisteract:

I think it's selfish to put the child through multiple transplants which will not solve her underlying problem. LUNG failure is not the cause of CF, it is a result of CF. Any lungs received will become infected, scarred and eventually fail. So now this child will deal with CF AND the life long consequences associated with transplantation.

The parents did this for THEMSELVES not for her, IMO.

For the religious, why not let this child go home to her creator?


 

grandma B

TheLadyAmalthea
by Bronze Member on Jun. 29, 2013 at 12:04 AM

If that were my baby, I'd be doing every thing in my power to save her too. It's just sad all around.

grandmab125
by Gold Member on Jun. 29, 2013 at 12:04 AM

 So, if your child is suddenly deathly ill, you'll do nothing in your power to hep her/him stay alive?  Or would you have a major attitude adjustment before letting your child die?

Quoting quickbooksworm:

This. She is going to die. They need to just accept it and stop with the surgeries. Transplants aren't without pain.


Quoting romalove:

SMH

I said what I thought about this when they were fighting for the right to have the transplant.

Every set of lungs they use that fail in this girl are a set that arent' saving someone else.


 

grandma B

T-HoneyLuv
by on Jun. 29, 2013 at 12:05 AM
Thank you.


Quoting grandmab125:

 Haven't you learned yet, dear, that there are quite a few cold hearted bitches on CM?


I certainly pray that when your child needs that transplant, that there is an organ available for her/him.  I can't imagine being in your situation.  Here's hoping..


hugsfingers crossed


Quoting T-HoneyLuv:

You think it's selfish to give their child a chance to live? I hope you are never faced with a situation such as this.



Quoting Sisteract:


I think it's selfish to put the child through multiple transplants which will not solve her underlying problem. LUNG failure is not the cause of CF, it is a result of CF. Any lungs received will become infected, scarred and eventually fail. So now this child will deal with CF AND the life long consequences associated with transplantation.


The parents did this for THEMSELVES not for her, IMO.


For the religious, why not let this child go home to her creator?



 


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JoshRachelsMAMA
by JRM on Jun. 29, 2013 at 12:06 AM
:('

Quoting T-HoneyLuv:

You know what? If it was any of your children, ALL of you against it would be singing a different tune. And yes this is coming from a parent of a child who will need a life saving organ transplant.
AtiFreeFalls
by Silver Member on Jun. 29, 2013 at 12:11 AM
3 moms liked this

 I must be missing something.  It seems like common sense. Any parent would give ANYTHING to save their child.  If she was approved for this transplant and it has a chance at giving her a few more years, why would anyone be against it?

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