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I just had to watch my daughter sit next to father knowing she may never see him alive again (2nd Edit)

Posted by on Sep. 30, 2013 at 9:12 PM
  • 192 Replies

 Just when I though it couldn't worse. My sister in law called me to get my daughter and get to the hospital. My ex husband and best of friend has Hep C and he has been going down hill all summer. No his liver and kidneys have completely failed and they told us he has a few days to a week left.

We are trying to set up hospice so he can come home and die in comfort but due to immigration issues it is not looking like it will be possible. He is not an illegal but he has no status at all and that's all I wish to say about that.

My daughter never did cry in front of any of us but I could see her pain and I could tell she was holding it in and I know she will cry herself to sleep tonight.

Edit: I am so drained right about now that I can't reply to everyone. When I get up in the morning and have had some rest I will come back to all the thoughtful replies.

Yesterday the doctor said there was no use in doing the dialyses. Today we thought he had made a turn around. He had eaten twice for what I just found out is the first time he has really ate in 2 months. He perked right up and was talking, laughing, said he had no pain.

 The doctor suggested going through and doing the dialyses. It's a 4 hour process and being sick and exhausted myself I came home for what I planned on being a short nap. I woke up 4 hours later and had no voice at all only a whisper and I could not get out of bed to save my life. 2 hours later I got the strength to get up and get back to the hospital.

The dialysis completely drained him and set back further than he was yesterday. The nurse sat me and my 3 sister in laws down in the lobby and told us this is the end. She said his blood pleasure is dropping and it is going to continue to drop until his heart fails.

My whole family is in denial and wont accept the reality. My sister in laws got really pissed at the nurse and demanded some high sodium broth. They were literally trying to force it down his throat while he was half conscious thinking they can raise his blood pressure. That was about all I could handle for today.

I'm so burned out from having to deal with one life changing tragedy after another for 5 weeks straight. I can't even get a chance to catch my breath and breathe between tragedies. I feel like I have aged 10 years over just the last 10 days.

Saturday: There has been an amazing turn around. On Wednesday i finally tracked down the doctor and put him right on the spot. he couldn't even answer my questions as to why he was doing what he was doing. I was very firm in letting him know that I know he doesn't have my ex husbands best interest in his heart and I let him know I know it's because he does not have insurance. That's a long story short. There was plenty more said.

Thursday i went in and what do you know... he has a new doctor who is a liver specialist. His organs were working 5% on Monday and we have been sat down and prepared for death at least 3 times now. This new doctor said now his organ function has come up to 45%. . Now they are taking extra measure and have him on immune boosters and IV nutrition, and vitamins trying to build up his strength. If we can get him up another 5% to 50% functioning then he will qualify for a liver transplant.

All this immprovement since Monday when they had basically just decided to let him lay there without treatment because they said there was no use because he is going to die within the next few days to a week.

Thanks for all prayers and well wishes. Your support (from all you) has meant allot.

by on Sep. 30, 2013 at 9:12 PM
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Replies (1-10):
FromAtoZ
by AllieCat on Sep. 30, 2013 at 9:14 PM

Wow.

I'm sorry to hear this.

How old is your daughter?

Seasidegirl
by Gold Member on Sep. 30, 2013 at 9:14 PM

So very sorry. 

kcangel63
by Bronze Member on Sep. 30, 2013 at 9:15 PM
1 mom liked this
I'm so sorry. :(
celestegood
by Silver Member on Sep. 30, 2013 at 9:16 PM
1 mom liked this
:(
Posted on CafeMom Mobile
terpmama
by Silver Member on Sep. 30, 2013 at 9:17 PM
1 mom liked this

Hugs

RaniNY
by Member on Sep. 30, 2013 at 9:17 PM
I would connect with a social worker, grief counselor and find out the age appropriate way to prepare her and help her deal. Also, a chaplain, if possible. I'm so sorry!
annabl1970
by Platinum Member on Sep. 30, 2013 at 9:19 PM
So sorry :(
Hugs to you and your daughter.
Posted on CafeMom Mobile
mmtosam06
by Bronze Member on Sep. 30, 2013 at 9:20 PM
I'm so sorry
stacymomof2
by Ruby Member on Sep. 30, 2013 at 9:20 PM
I'm sorry Muslimah. Very sad.
muslimah
by on Sep. 30, 2013 at 9:21 PM

 

Quoting FromAtoZ:

Wow.

I'm sorry to hear this.

How old is your daughter?

 Almost 16 and thanks

 Subhan Allah ( سبحان الله )"Glory be to Allah"
 Alhamdulillah ( الحمدللہ )"All Praise to Allah"
 Allahu Akbar ( الله اكبر )"Allah is the Greatest"

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