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Bones not growing properly? My son's best friend - What is it and how do I explain it? Please pray for fam.

Posted by on Apr. 22, 2010 at 1:49 PM
  • 17 Replies

I took my son to the ER last night for the headache he had. It was so bad they had to put him into a wheelchair to get him into the Peds area. Welp while there his best friend was leaving the ER and I talked to his mom. She was very upset. She told me her son fell from their trampoline and hurt his arm, so they took him to the ER to ensure it was not broken. Welp it wasn't broken it was sprained, but she was given some really bad news. When they did the X-rays they found out his bones were not growing properly for his age. They said his bones aren't getting bigger and they should be. She was very upset, and would have been crying if her son wasn't there. They have to go and see a specialist. Anyone know what this is? Anyone know if he is going to be okay? Is this curable or is this something he could or will die from? How do I explain this to my son? He is his best friend in the entire world. If he is going to die, (God forbid), how am I going to be able to explain it to him? What do I do? Do I just say nothing, and let my son watch him get worse slowly without explanation? What would u do? I love this kid and it's breaking my heart. He spends a lot of time with us, having dinners, going to parks, sleepovers, dog parks, the beach, cub scouts, and more....

by on Apr. 22, 2010 at 1:49 PM
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Replies (1-10):
Destiny1403
by on Apr. 22, 2010 at 1:51 PM

I think you might be jumping the gun here. First thing is to find out what is actually wrong. Im sure there are many conditions out there that this boy could have. Best to find out which one it is first. My prayers will be with him.

lanceandhailey
by Silver Member on Apr. 22, 2010 at 1:55 PM

There are many possibilities out there, but I doubt he's going to die...

sexeegyrl
by on Apr. 22, 2010 at 2:07 PM

Are you referring to his "bone age"? If so this is probably a growth hormone deficiency which is treatable. My 30 month old son is very short and just had a bone age x-ray done and it showed his skeletal system to be that of a 21 month old. We have been referred to an Endocronologist for further evaluation. Does this boy happen to be short?

MomLovey
by on Apr. 22, 2010 at 2:25 PM

He isn't short, which is the weird thing. He is about the same size as my son, who is average for his size. I don't understand it. I hope you are all right. The weird thing is the dr. at the ER told her to take down the trampoline for good, and told he he can't go to the amusement park where my son is having his birthday party, and he can't ride his bicycle or do anything that he could get hurt with anymore. I don't get it. I don't know if he told her a name for what it is, but she was so upset and I was more comforting her than I was asking her questions. He cannot ride his bike, or scooter, or use his skate shoes any more, he cannot jump on the trampoline or climb on the monkey bars at the park, can't go on the rides at the amusement park, or anything. I am just so confused about it all, he always seemed healthy and active and happy.

peanutsmommy1
by on Apr. 22, 2010 at 2:33 PM

 short of having OI, I can't think of anything that would prevent a kid from doing the things you mentioned

MomLovey
by on Apr. 22, 2010 at 2:40 PM

What is OI?

peanutsmommy1
by on Apr. 22, 2010 at 2:42 PM

 sorry, osteogenesis imperfecta, brittle bone disease

but I can't think of a single case of that where a child was not diagnosed at or shortly after birth

MomLovey
by on Apr. 22, 2010 at 2:43 PM

Right he just turned 8 yrs old. I'm soooo confused. And I don't know how to help his mom. She is very upset, and they said he needed to get in to see someone right away. Plus he only sprained his arm. If he had brittle bone disease, wouldn't he have broken it?

KaylasMiracle
by on Apr. 22, 2010 at 2:43 PM

Osteo Imperfecta...Brittle bone disease where the bones are easily broken from bumps a normal kid would get up right after

rpowers12
by on Apr. 22, 2010 at 2:45 PM

Calm down first. Stay in touch with the mom. Right now all your son needs to know is he is sick and needs to see a doctor. Have him keep the friend in his prayers. Then when you find out a little more information let us know and we can help. I don't think you need to inform your son this little boy may pass if the situation comes up like that depending on your chllds age this may scare him if he doesn't understand it. But be upfront and honest and tell him not to feel weird out about this. He can't catch it and they can still be friends.

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