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Stay or go?

Posted by on Aug. 31, 2010 at 9:17 PM
  • 6 Replies

 

Poll

Question: CDH (close) or LGH (far)?

Options:

CDH

LGH


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Total Votes: 6

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Our only preemie issue is swallowing. We have to add thickener to his bottles, and due to a really bad swallow study, thickened baby food is the only solids he can have.

The other night while eating dinner, he started choking and couldn't clear it. He turned blue and everything. My heart stopped. I'm sure it was only a few seconds, but it felt like a lifetime.He was finally able to start coughing and cleared it. He choked again the other night, but cleared it a lot quicker this time.

We see his speech therapist still from the NICU, and now we have to see a G.I. Specialist. He may need surgery. He was supposed to grow out of this. And its getting worse. I am pretty sad.

But on the plus side, UNADJUSTED for a one year old, 70th percentile for height, 50 for weight and 45 for head!!!! (he should be nine months old)

What do you ladies think? We can go back to LGH (hour each way) for the GI, or CDH (15 min away).  ALL of his specialists are still at LGH.  But, the CDH doctors are really good too. He was born at LGH and in their NICU for three months. Which would you pick?

 

by on Aug. 31, 2010 at 9:17 PM
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Replies (1-6):
lundaylove
by on Aug. 31, 2010 at 9:19 PM

i stuck with the hospital that my girls were at in their nicu for their specialty care even though it was an hour and a half away, til we moved out of state. o just felt more comfortable with the docs who already knew them and their needs

coloradomom3
by on Aug. 31, 2010 at 9:19 PM
I would stick with docs that are familar with his "case".
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BaileynMe
by on Aug. 31, 2010 at 9:21 PM

If all the doctors who are familiar with his medical history are at LGH, I'd go there. An hour is far, but not terrible, and as long as it's not a life-threatening issue (like the choking; for that obviously I'd go to the nearest hospital if I needed to go) I'd want to stick with the drs who have experience with him personally. 

I'd probably try to do the speech therapy closer, but for the GI issues definitely the ones who've handled his case before.

AES514
by on Aug. 31, 2010 at 10:26 PM

bump

mommawombat
by on Aug. 31, 2010 at 10:38 PM

 I don't know, I travel 4 hours one way to our children's hospital when I go. Do you have the second opinion with your insurance? If so you can always use that. then decide what to do.

AM-BRAT
by Amber on Aug. 31, 2010 at 10:39 PM


Quoting lundaylove:

i stuck with the hospital that my girls were at in their nicu for their specialty care even though it was an hour and a half away, til we moved out of state. o just felt more comfortable with the docs who already knew them and their needs


Makese sense, docs that know them. Sometimes fresh eyes can be a plus too though. IDK, OP, sorry...

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