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Heterotopia

Posted by on Sep. 28, 2010 at 3:09 PM
  • 5 Replies

 My 6 year old had eye surgery on Friday and she also had an MRI done. The eye surgeon called me today with results of the MRI. He said her eye was fine but there was a brain abnormality that falls outside his area of expertise. He didn't read the whole report because it is very technical, but he mentioned Heterotopia. Has anyone ever heard of this? From what I gather it is when some nerve cells in the brain form in the wrong place. It "almost always" results in epilepsy that starts usually between 6-13 years old. There isn't a ton of info that I could find and our neurologist hasn't called me back. Any info is appreciated!

by on Sep. 28, 2010 at 3:09 PM
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Replies (1-5):
KimandCarrie
by on Sep. 28, 2010 at 4:13 PM

BUMP!

starfilled
by on Sep. 28, 2010 at 4:15 PM

idk, I would read up on webmd... hopefully your neurologist gets back to you soon!

AM-BRAT
by Amber on Sep. 28, 2010 at 4:16 PM

BUMP!

NearSeattleMom
by Gold Member on Sep. 28, 2010 at 4:48 PM

I have no information but good luck!  I hope everything works out all right.

KimandCarrie
by on Sep. 28, 2010 at 5:34 PM

 Thanks guys! Webmd doesn't even have heterotopia listed. I am doubting I'll hear from the neurologist tonight, so hopefully tomorrow he'll call.

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