my name is Harley ill be 19 in june i was raised by mii pap n g-me then at 17 mii mom stole me away while in g.e.d class i met a man named Michael we had so much fun together n had so much in common then i was pregnant 3 weeks in wen i found out we couldn't believe it... we knew we loved each other but we were not ready for a kid also i have a disease called charco-marie tooth its a type of m.d. i also have seizures so i was very worried about being pregnant or having a kid n Michael was very well aware of mii fears about mii health and bein a parent or family
mii son was born on September 13 2011 he almost didn't make it because they didn't know what was wrong and who he was not absorbing or keeping down formula (mii m.d. make me unable to breast feed) mii son soon sent to a specialty hospital 2 hours away from me he spent four months there nd they never found anything they did however putt a broviac nd a mic key button in him due to his lack of absorbing anything from his formula in the fourth month i was very fed up nd very mad at the hospital so i had my son transferred out of state to Pittsburgh children's hospital mii son was transported there the first 2-3 months were mainly retesting nd gathering information on mii son and how he acts and reacts to different things in the 3rd month at children's they told me that mii sons villi didn't work nd that the t.p.n he is on will b the only way to get him to grow and b healthy until or if his villi ever begin to work again after a few more months passed we learned all Maison's care (it was so hard at times looking back now idk how i ever even began to learn the stuff i now do every day) in the 7th month they told us that they could not find me anny nursing for mii son to go home with the hospital sent me Maison's dad nd Maison to the children's home of pittsburgh where we learned to do what the nurses used to do the sterile technique on his broviac (witch goes straight to his heart) how to tend to the granulated tissue around his mik key button (witch is a button that goes through a whole in his stomach to give him meds or food when he maybe begins to eat) and how to replace his mik key should it ever pop out of the whole in his stomach after that we finally got too take our son home(they did end up finding me nursing) then after not even a month of mii son bein home mii g-ma died its been 3 days since her showing and i still feel like im goin to fall into a black whole it feels like everything just keeps getting harder wat do i do?!?!?