This nighttime pain has been happening since he was 2.5. He will be 5 on the 6th! It hasn't happened in 2 weeks but hes been on tylenol with codiene.
I don't know where to turn. Ive taken him to 5 pediatricians. Hes been to a pediatric urologist who found and corrected undecended testicles but last time he was there they said everything was normal and if he continues to have pain take him to his pediatrician. There's nothing more they can find/do. They are sending him to physical therapy for his urinary frequency and incotenience but say there is nothing to be causing the pain.
We've been to the er. The children's hospitals refer to the urologist he just saw. There aren't any other pediatric urologists for hundreds of miles.
it is suspected the pain when urinating might be a sensory issue but no definitive answers yet.
he has had ultrasounds done of the entire area multiple times. A vcug. Full blood panels.
Where do I turn??