Join the Meeting Place for Moms!
Talk to other moms, share advice, and have fun!

(minimum 6 characters)

Bloated,painful/tender to touch entire stomach, cramps but can't fart

Posted by   + Show Post
Hello ladies, I'm just forewarning you all that this post is a question about my healthy, not my sons. I probably could've made it shorter but i feel I need to include all these details, because I'm hoping one of you may have dealt with this before and have some suggestions.





A few weeks ago I woke up with debilitating pain in my upper stomach, right under the tip of my breast bone. It didnt last long, but I felt really nauseous and tried my best to not puke and go back to sleep. When I woke up at 3AM to get ready for my 7 day a week paper route, I felt even more nauseous then earlier and I didn't make it three minutes before running to the bathroom and puking up everything I ate the day before and some stomach acid to top it off. I took quick hot shower because ever since I can remember, hot showers are the only thing that make me feel better when I'm ANY kind of sick. BF offered to do the route for me but I thought the puking was the end of it. It wasn't. I was nauseous the entire time and couldn't help him, just sat in the backseat trying not to puke, nibbling on crackers. I made him drive me to a gas station bathroom at one point during the 2 hour paper route. I pooped and it ripped my hole apart and I again, thought that was the culprit and I'd be fine. Wrong again. After the route, we made the 30 minute trek To our NA meeting in Cleveland and I thought I was Doing better cuz I found a lay down position helped with the nausea. My son wakes up in the carseat in the back and I climb back there to lean over his seat and nurse him so hell hopefully back asleep. Not even two seconds into nursing him i puke all over the floor of our van. Stomach acid, crackers and applesauce. My sons screaming and I go Back to feeding him and he falls back asleep. Back at home about an hour later, BF has to be at work at 8 and now I'm gettin stomach cramps so bad that I'm keeled over in the fetal position clenching my stomach and teeth until the pain passes. It would hit every couple minutes and last for what felt like the longest 30 seconds of my life! My mom has to work later on so my BF calls off so he can help me throughout the day, but he still has to drop a bunch of tools off at the job site a half hour away, so this leaves my ma helping me with my son for a few hours. The pain gets worse and I'm using a heating pad and its KIND of helping. Now my entire body is aching, in parts that make absolutely no sense because they seemingly have nothin to do with stomach illnesses. Both of my hips hurt, my knees, and my entire back from top to bottom and all up and down the sides is hurting. But the lower back above my buttcrack and the way across Is throbbing, like sciatica. Mom rubs my back and heating pad helps the aches but not the stomach. I end up puking again when I go to nurse my son and he lays on my stomach the wrong way. This in turn caused me to dry heave for a few minutes because I was empty inside, and the heaving caused pain all over.





I call my doctor and she says I need to go to the ER if my pain is above a 6 on a 1-10 scale, and I had told her mine was a definite 9. Even though I KNOW those nurses HATE being asked these types of questions and they DONT have an accurate answer to give, I still asked what the wait time was anyways if I were to come right that second. 'At least expect a 4 hour wait ma'am'. And the other hospital in my area said 2 hours. There was no way in hell I could do that because I had my 16 month old son with me and no one to watch him since my ma was leaving for work soon and Tim wasn't home yet. I didn't go to the ER and within three hours the pain subsided enough that I could function, but the nauseousness was ever present. I was able to sleep that night without puking again and the next AM I called my doc again, hoping shed see me since my pain level went way down. She gave me an appointment with her nurse practitioner because she was packed. At the appointment she prescribed me Compazine for the nausea but couldn't tell me what was causing it until got my tests done that she was ordering: a full abdomen ultrasound and blood work. Got the tests done the next day and felt alot better, not many stomach cramps but still slight nausea. Two days later I got two seperate letters in the mail with my test results. Both were completely negative. Everything tested was normal. That was that? So my doc couldn't tell me what she thought it Was then?? I just decided it was the worst gas pain I've ever had and hoped it never happened again.





About a week later, a few days after Christmas, my son randomly projectile pukes right after waking up and nursing. He does this a few more times throughout the day and when I call the 24 hour baby sick line, they tell me he's just got a stomach bug/flu and to keep him hydrated. They asked if anyone had been sick recently in our home and when I mentioned my symptoms, she said I probably had the same stomach bug but everyone handles it differently and experiences different symptoms and pain. My baby got Better quickly, thank god it was the next day! I forgot about our stomach bugs because I didn't expect either of us to get sick like that again.





Well, just last night I wake up with insanely horrible stomach cramps in my upper abs, right below my Breast bone. I automatically get worried I'm getting the same crap from last time, but it doesn't get worse, it just stays a really tense, hard pain. Then it spreads through my whole stomach, and its now very painful to touch anywhere on my stomach but mostly like 2 inches out from my belly button all the way around in a circle around my navel. It's like bloated mess, tender, and it feels like very strong , stuck gas. I take a gas ex and it doesn't help. I take pepto and there's still no relief. I can also feel hard lumps on lower stomach, like alone my waist line where my jeans stop, and they're painful to press into. This stomach pain that's throughout my whole tummy also goes down all the way to below my belly button as far down as ones stomach can go, and that area is also very tender to touch. I get some farts out at some point but not as many as I know I need to. I also go poop twice thinkin this will help and it doesn't. Instead it KILLS to try pushing to go to the bathroom or push the gas out. Makes my entire stomach tighten up and spasm when I push. So pooping twice didnt help it just hurt. If there's nothing wrong me and I got every single test done and had negative results, what the hell is wrong with me!?its not the same pains as last time because its not SO severe that I can't function, and this times actually feels like I'm bloated and filled with gas but can't relieve any of it... An I seriously just experiencing flatulence AGAIN and I just get different painful cramps every time!? Cuz I can't possibly have this as a frequent thing... That'll effect my life and mothering negatively.





Has anyone else ever had this Happen? What do you do when it happens? And no it's not constipation obviously because I can poop and am always regular.i don't eat alot of gassy foods either.



EDIT: 1/9/13

After reading the very small amount of responses i received

(sorry I was just hopin more women would read it because then there'd be a much higher chance of someone knowing what this is, or what to do in my situation. But my OP was probably way too long to continue reading for most members :( , so thanks so much to all the moms who did read it entirely and take the time to offer your suggestions! Xoxox)

I decided I should edit the OP to remind you that I DID go to a doc before Xmas when the first bout of severe pain occurred, I DID get a full tummy ultrasound and blood work to rule out infection-ALL those tests came back 100% normal. It was three weeks ago that I went to the doc and I haven't had any pain since then, up until yesterday. And the two occurrences are completely different pains, and the first time was debilitating with nausea and body aches, whereas this time is just bad bad bloatedness and a tender hard stomach. And to the few commenters who said 'appendicitis, gallstones, kidney, go to your doc or ER ASAP!' : I had an ultrasound that would've showed if I had ANY of these, therefore I DONT, that's why I posted this to see wtf could be my problem.



I called the doc who ordered the tests the other day, and asked her what could be the problem if my tests are clear. She told me to go see my GI doctor, so I made an appointment and can't get in until the end of the month. I decided today I'm switching doctors too because I think mine Is a useless lazy bitch because she could've told ME I need to follow up with a specialist; but instead I had to call HER to ask HER what I should do because she KNOWS my tests came back normal and yet left it at that. Pretty much saying 'I don't know what your deal is, sorry can't help.' .... Wtf she's a DOCTOR!!!

Most recent edit for any ladies that have been giving me great advice an want to know the update, here it is if anyone's still following this thread:

Got into a local GI doc that my primary referred me to, only because my Gi doc from a different health practice couldn't get me til jan 28 & I didn't want to wait that long. So I went there expecting to get some answers and a colonoscopy scheduled. He shows up two hours later so my sons incredibly fussy and he sees me for two minutes and is rushed the entire time, not wanting to answer my questions but I kept asking away but didnt get ONE solid answer or explanation. All he said was he can't do a colonoscopy until I'm done nursing because of the anestsia used. He said he CAN do the other one that uses a throat scope because its possible to have that procedure without gettin anesthetics BUT he's 'not giving me that unless my symptoms don't subside and I absolutely feel the need to call him back.' Wtf!? He then says he's prescribing me Prevacid or Prilosec. I say 'um why? What's that for?' He Says reflux and heartburn and I say 'I know what's its FOR but why should *i* be taking this when those aren't my symptoms?' He Says 'because it may be reflux causing your pain.' I swear my jaw dropped. I had Already explained to him In detail the severe pain I was having followed by random bouts of different stomach symptoms but I said AGAIN 'um I don't think it's reflux; I have severe pain Etc etc etc, what could it be!?' He didn't give me ONE frickin helpful response! No 'well it's definitely not this' or 'it could be this' or 'let's try this'.... Nothing! He said add more fiber and water to my diet and see what foods upset my stomach. Wow doc thanks. I already knew that!!!
Posted on the NEW CafeMom Mobile
by on Jan. 8, 2013 at 9:59 AM
Replies (51-60):
tossed
by Member on Jan. 15, 2013 at 10:59 AM

I am sorry you are in distress. There are times when there is no easy answer and it takes a while to get results. My son and I both have stomach issues. He threw up 10=12 hours a day and had alternating diarrhea and constipation with severe stomach pain and cramps. He had the ph probe which is the test that goes down into your stomach and does not require anesthesia (an endoscope does) and his issue was reflux. He ended up with major surgery due to the severity.

I threw up and had alternating diarrhea and constipation with severe pain and it was caused by gallstones.

Right now, I have severe pain and tenderness and am being treated for hpylori.

I list these things because there are times when there are no clear answers and it may be a combination of conditions. In my son's case, it took months and 4 specialists to diagnose his issues. It took a year to settle on my gallstone diagnosis and even before the surgery the surgeon said that although I clearly had gallstones, he did  not think that was my problem.  yeah, it was.

Good luck. Go see another GI or go sit in the ER, but expect them to refer you to a GI.

tossed
by Member on Jan. 15, 2013 at 11:04 AM

THIS...it took a year to finally diagnose mine and it was not until I was near liver failure. I threw up almost every time I sat up. When I was being released, my surgeon was in an emergency. I was given the option of seeing a partner or rescheduling. i saw the partner. He kept looking at the biopsy report saying, "Your gb was sick. Really, really sick and for a very long time. " No joke. I have a friend whose husband's gb ruptured because it was not diagnosed. He was super sick.

Quoting momof6nokc:

My mom suffered for about 6 months with bouts of intense stomach pain, vomiting, diarrhea.  She saw her doctor several times and all tests came back fine. 

One night she called me and said she simply HAD to go to the ER---she was so sick.   They did an ultrasound of her gallbladder AGAIN (she'd had several in the previous months) and they found gallstones, however her bloodwork wasn't showing anything amiss.

They admitted her to the hospital and scheduled her for surgery in the afternoon. I went home to sleep a few hours and when I got back up to see her she was YELLOW. 

The gallstones had blocked a bile duct and now her liver was involved. 

When the doc took the gallbladder out he had to end up doing a full abdominal incision as the gallbladder was too "sludgey" to remove laparoscopically.  She ended up spending a full week in the hospital and then had to go to physical rehab (she's in her 70's).  The surgeon said the gallbladder doesn't always show how sick it is until it goes totally bad.  :o(

Quoting xxshelbyxxx:

Well I hope to god it doesn't take them 4 times to figure my problem out! Did he get an ultrasound the first few times and they just missed it!? Cuz I've been worrying that they must've missed something in my ultrasound because the nurse said I was gassy she had to literally push around the gas bubbles to get good pictures of my insides.


Quoting atlmom2:

gallbladder was what I am thinking. Sil had to go to the ER 4 times before they diagnosed her and took it out.



tossed
by Member on Jan. 15, 2013 at 11:15 AM

I have had probably 15 cysts and they did not always show on ultrasound.

Some of what you describe sounds like irritable bowel syndrome. The looping of pain sounds like you are tracing your digestive tract which does loop into lower abdomen. When I have bad attacks, I swear it huts like labor pains and doubles me over, leaves me nauseated and in extreme pain. I take bentyl for it...a muscle relaxer of the smooth muscles of the digestive tract.

On the colonoscopy...not all drs use anesthesia. I have had several due to my conditions and have only had anesthesia once. When I was pregnant, they did a flexible sigmoidoscopy (does not go as high up) because it was less invasive, but they needed to check my colon.

I would not be overlyy critical of the dr for not suggesting a GI on the first trip...a primary care physician is considered a "gate keeper" in the medical community. They are there to treat most things and only refer a person to a specialist when a case becomes more complex or for certain conditions. She would not know that until getting your test results, which were negative. Also, you had a period of time when you were better. She did mention a specialist when you called back. Her behavior really seems reasonable given the current protocol of medicine in the US. 

Quoting xxshelbyxxx:

Omg see!? That's so scary! Because I swear I feel like something HAS to be wrong or else i wouldn't have frequent stomach problems ya know? That's why I don't understand how my doc could just kinda 'let it go' after my tests came back normal, like why wouldn't she suggest going to a Gi doc or like another mom on here suggested, starting a food journal to see if I'm lactose or gluten intolerant? It's like she just brushed it off as gas since my tests were normal...

So with your cysts, how long or how many tests did it take for them to find them and was it in an ultrasound that they eventually saw them? And also, were you having the same kinda symptoms I get? Because its not even JUST my stomach half the time, it's like under my stomach above my pubic line and all the way across horizontally and there will be hard lumps that ache sometimes and hurt to press on. And the spasms go throughout my entire stomache, back and lower region, even my b hole when I try to pool or fart.

Sorry for typing so much I'm just trying to get to the bottom of this and asking you ladies questions is helping me get a little clearer picture. So thank you


Quoting TerriAnne2606:

Mine did not.  


Quoting xxshelbyxxx:

That's what I was thinking when I looked online the other day for my symptoms because the cysts had one symptom I have that no other illness had listed.. But I assumed they'd show up on a ultrasound... You're saying they don't?





Quoting TerriAnne2606:

Okay -just brainstorming. What about a cyst on an ovary?  I know how truly painful that is and yet they cannot see anything when I have them on xray or ct scan or mri...  Again - just brainstorming...  

Hugz



Quoting xxshelbyxxx:

No no no no it's not that I promise you! I'd be DYING from pain if it were that. Like I said in my OP, the pain I'm having now isnt even the same pain as the time before Xmas that I went to the doc for, that was debilitating, this I can handle, I'm just confused cuz if nothing came up on my tests then WHAT could be causing this!?








Quoting TerriAnne2606:

Appendicitis?  I'd go to the ER - make your mom go to work late or Tim come home NOW to take you.










xxshelbyxxx
by Member on Jan. 16, 2013 at 8:28 AM
Yeah you're probably right about the doctor an the way she handled things, but often I feel like doctors don't take my issues seriously because I'm a recovering drug addict. I'm never seeking pain meds though, I've never once been prescribed pain meds or asked for them. I'm just a two year sober mom whose body unfortunately has some permanent damage from the 3 years straight of drug use with no hygene or medical attention.

But anyway, there's another reason my current doc kinda bothers me, something she said awhile back. My son was a year old and I told her how I was diagnosed with IC but couldn't take meds for it til I was done nursing, and she raised her eyebrows and goes 'well anything past 6 months is unnecessary anyways, you just nurse him for comfort now right?' And I said no he still nurses for food actually and she said 'well I think it's time you start thinking about yourself, he'll be fine.' And I know you'll probably say the same thing you said about the first reason my doc bothered me, which is fine because you're probably right, but some things offend me and don't need to come out of a doctors mouth. So anyways; back to the stomach problems. Sorry. I rant and vent too much.

So yours was cysts that weren't diagnosed for a super long time? And you have IBS? Cuz I'm starting to believe that first bout of serious pain I had was a gallstone passing because that'd make sense that they didnt see it in a ULtrasound two days later. Plus I haven't pain like that since that day, that four hour horrible period. I still have random stomach aches, pains, gas, bloating though, which is why I KNOW something else is going on and wish someone could help me sooner!

And yea I heard you can get colonoscopies done without the numbing agent because my ma never had anesthetic when she had hers but that was over 10 years ago. I'm assuming my doc doesn't even do them without knocking you out cuz he didnt even offer to do it without; even though I know it can be done. So did it hurt without the anesthesia?


Quoting tossed:

I have had probably 15 cysts and they did not always show on ultrasound.

Some of what you describe sounds like irritable bowel syndrome. The looping of pain sounds like you are tracing your digestive tract which does loop into lower abdomen. When I have bad attacks, I swear it huts like labor pains and doubles me over, leaves me nauseated and in extreme pain. I take bentyl for it...a muscle relaxer of the smooth muscles of the digestive tract.

On the colonoscopy...not all drs use anesthesia. I have had several due to my conditions and have only had anesthesia once. When I was pregnant, they did a flexible sigmoidoscopy (does not go as high up) because it was less invasive, but they needed to check my colon.

I would not be overlyy critical of the dr for not suggesting a GI on the first trip...a primary care physician is considered a "gate keeper" in the medical community. They are there to treat most things and only refer a person to a specialist when a case becomes more complex or for certain conditions. She would not know that until getting your test results, which were negative. Also, you had a period of time when you were better. She did mention a specialist when you called back. Her behavior really seems reasonable given the current protocol of medicine in the US. 


Quoting xxshelbyxxx:

Omg see!? That's so scary! Because I swear I feel like something HAS to be wrong or else i wouldn't have frequent stomach problems ya know? That's why I don't understand how my doc could just kinda 'let it go' after my tests came back normal, like why wouldn't she suggest going to a Gi doc or like another mom on here suggested, starting a food journal to see if I'm lactose or gluten intolerant? It's like she just brushed it off as gas since my tests were normal...



So with your cysts, how long or how many tests did it take for them to find them and was it in an ultrasound that they eventually saw them? And also, were you having the same kinda symptoms I get? Because its not even JUST my stomach half the time, it's like under my stomach above my pubic line and all the way across horizontally and there will be hard lumps that ache sometimes and hurt to press on. And the spasms go throughout my entire stomache, back and lower region, even my b hole when I try to pool or fart.



Sorry for typing so much I'm just trying to get to the bottom of this and asking you ladies questions is helping me get a little clearer picture. So thank you





Quoting TerriAnne2606:

Mine did not.  



Quoting xxshelbyxxx:

That's what I was thinking when I looked online the other day for my symptoms because the cysts had one symptom I have that no other illness had listed.. But I assumed they'd show up on a ultrasound... You're saying they don't?








Quoting TerriAnne2606:

Okay -just brainstorming. What about a cyst on an ovary?  I know how truly painful that is and yet they cannot see anything when I have them on xray or ct scan or mri...  Again - just brainstorming...  

Hugz




Quoting xxshelbyxxx:

No no no no it's not that I promise you! I'd be DYING from pain if it were that. Like I said in my OP, the pain I'm having now isnt even the same pain as the time before Xmas that I went to the doc for, that was debilitating, this I can handle, I'm just confused cuz if nothing came up on my tests then WHAT could be causing this!?











Quoting TerriAnne2606:

Appendicitis?  I'd go to the ER - make your mom go to work late or Tim come home NOW to take you.














Posted on the NEW CafeMom Mobile
xxshelbyxxx
by Member on Jan. 16, 2013 at 8:34 AM
Omg your poor son! That's horrible! How old was/is he? Because I can't even begin to imagine a young child going through what you described! And it's so unbelievable how long it took them to give you a straight answer! I have a feeling its gonna be the same situation with me huh? Because if it took your son 4 dif specialists then I know for a fact I'm gonna have to keep trying and stick to my gut instinct telling me something's not right. I have an appt with my regular GI because I wasn't sure if I'd get a sooner one with the other guy, who I've never seem before, but he ended up getting me in yesterday and I was gonna cancel my appt at the end of the month but im gonna keep it now that you said I should keep trying to get a real diagnosis.

So what finally made your doc say it actually was gallstones like you had suspected? Did an ultrasound finally end up showing it? Bloodwork? Just curious cuz nothing came up on my tests or blood and I'm wondering how many its gonna take for them to find it. And did you have more then one stone and if a person gets one does that make them more prone to another? What does the stones do to your gallbladder? Is that what makes the GB sick ? Going untreated after passing stones like yours did? Cuz you're the third person with a story like this... About docs missing the stones then months or years later having to remove the GB completely because it was so sick...



Quoting tossed:

I am sorry you are in distress. There are times when there is no easy answer and it takes a while to get results. My son and I both have stomach issues. He threw up 10=12 hours a day and had alternating diarrhea and constipation with severe stomach pain and cramps. He had the ph probe which is the test that goes down into your stomach and does not require anesthesia (an endoscope does) and his issue was reflux. He ended up with major surgery due to the severity.

I threw up and had alternating diarrhea and constipation with severe pain and it was caused by gallstones.

Right now, I have severe pain and tenderness and am being treated for hpylori.

I list these things because there are times when there are no clear answers and it may be a combination of conditions. In my son's case, it took months and 4 specialists to diagnose his issues. It took a year to settle on my gallstone diagnosis and even before the surgery the surgeon said that although I clearly had gallstones, he did  not think that was my problem.  yeah, it was.

Good luck. Go see another GI or go sit in the ER, but expect them to refer you to a GI.


Posted on the NEW CafeMom Mobile
xxshelbyxxx
by Member on Jan. 16, 2013 at 8:37 AM
Omg !! You're the third or fourth person whose had this happen! I'm gonna be so mad If this happens to me! Why are they so liable to miss the gallstones?! I don't understand how it takes them so long and it sounds like its common! My ULtrasojnd was normal so they just blew me off like I was fine and just had a bad day! Wtf!? Can you sue a doc for something like this? If your liver was failing and there was something they could've done but didnt cuz they're fuckin blind!? Omg I'd be so mad!


Quoting tossed:

THIS...it took a year to finally diagnose mine and it was not until I was near liver failure. I threw up almost every time I sat up. When I was being released, my surgeon was in an emergency. I was given the option of seeing a partner or rescheduling. i saw the partner. He kept looking at the biopsy report saying, "Your gb was sick. Really, really sick and for a very long time. " No joke. I have a friend whose husband's gb ruptured because it was not diagnosed. He was super sick.


Quoting momof6nokc:

My mom suffered for about 6 months with bouts of intense stomach pain, vomiting, diarrhea.  She saw her doctor several times and all tests came back fine. 

One night she called me and said she simply HAD to go to the ER---she was so sick.   They did an ultrasound of her gallbladder AGAIN (she'd had several in the previous months) and they found gallstones, however her bloodwork wasn't showing anything amiss.

They admitted her to the hospital and scheduled her for surgery in the afternoon. I went home to sleep a few hours and when I got back up to see her she was YELLOW. 

The gallstones had blocked a bile duct and now her liver was involved. 

When the doc took the gallbladder out he had to end up doing a full abdominal incision as the gallbladder was too "sludgey" to remove laparoscopically.  She ended up spending a full week in the hospital and then had to go to physical rehab (she's in her 70's).  The surgeon said the gallbladder doesn't always show how sick it is until it goes totally bad.  :o(

Quoting xxshelbyxxx:

Well I hope to god it doesn't take them 4 times to figure my problem out! Did he get an ultrasound the first few times and they just missed it!? Cuz I've been worrying that they must've missed something in my ultrasound because the nurse said I was gassy she had to literally push around the gas bubbles to get good pictures of my insides.





Quoting atlmom2:

gallbladder was what I am thinking. Sil had to go to the ER 4 times before they diagnosed her and took it out.





Posted on the NEW CafeMom Mobile
PinkParadox
by on Jan. 16, 2013 at 8:44 AM
Gallbladder is my first thought. Keep a journal of what you're eating.
Posted on the NEW CafeMom Mobile
tossed
by Member on Jan. 16, 2013 at 9:25 AM

It is much harder to sue a dr than people think. I looked into when my mom died. The lawyers explained how much it costs them up front to prepare for a medical malpractice case, so I can't really blame them. Now, had I did...maybe.

In my case, my dr ordered an abdominal x ray the summer before. I later found out that cholesterol gall stones don't show up on x ray, only ultrasound. On ultrasound, they can be missed. They have to be very thorough on how they position you, etc. I was one of the last patients of the day when it dawned on my dr what was probably wrong...after a year of complaining. She could not get an ultrasound that day, but they scheduled it for 6 am. I had 2 different techs do the ultrasound and they finaly found the stones. They can also be in the duct work. I worked with a girl whose stones were not seen until they blocked a bile duct. They have become common in younger women due to the dietary changes in the American diet. It used to not be that common. I was in my late 40s before mine was detected.

Quoting xxshelbyxxx:

Omg !! You're the third or fourth person whose had this happen! I'm gonna be so mad If this happens to me! Why are they so liable to miss the gallstones?! I don't understand how it takes them so long and it sounds like its common! My ULtrasojnd was normal so they just blew me off like I was fine and just had a bad day! Wtf!? Can you sue a doc for something like this? If your liver was failing and there was something they could've done but didnt cuz they're fuckin blind!? Omg I'd be so mad!


Quoting tossed:

THIS...it took a year to finally diagnose mine and it was not until I was near liver failure. I threw up almost every time I sat up. When I was being released, my surgeon was in an emergency. I was given the option of seeing a partner or rescheduling. i saw the partner. He kept looking at the biopsy report saying, "Your gb was sick. Really, really sick and for a very long time. " No joke. I have a friend whose husband's gb ruptured because it was not diagnosed. He was super sick.


Quoting momof6nokc:

My mom suffered for about 6 months with bouts of intense stomach pain, vomiting, diarrhea.  She saw her doctor several times and all tests came back fine. 

One night she called me and said she simply HAD to go to the ER---she was so sick.   They did an ultrasound of her gallbladder AGAIN (she'd had several in the previous months) and they found gallstones, however her bloodwork wasn't showing anything amiss.

They admitted her to the hospital and scheduled her for surgery in the afternoon. I went home to sleep a few hours and when I got back up to see her she was YELLOW. 

The gallstones had blocked a bile duct and now her liver was involved. 

When the doc took the gallbladder out he had to end up doing a full abdominal incision as the gallbladder was too "sludgey" to remove laparoscopically.  She ended up spending a full week in the hospital and then had to go to physical rehab (she's in her 70's).  The surgeon said the gallbladder doesn't always show how sick it is until it goes totally bad.  :o(

Quoting xxshelbyxxx:

Well I hope to god it doesn't take them 4 times to figure my problem out! Did he get an ultrasound the first few times and they just missed it!? Cuz I've been worrying that they must've missed something in my ultrasound because the nurse said I was gassy she had to literally push around the gas bubbles to get good pictures of my insides.





Quoting atlmom2:

gallbladder was what I am thinking. Sil had to go to the ER 4 times before they diagnosed her and took it out.






tossed
by Member on Jan. 16, 2013 at 9:46 AM


Quoting xxshelbyxxx:

Omg your poor son! That's horrible! How old was/is he? Because I can't even begin to imagine a young child going through what you described! And it's so unbelievable how long it took them to give you a straight answer! I have a feeling its gonna be the same situation with me huh? Because if it took your son 4 dif specialists then I know for a fact I'm gonna have to keep trying and stick to my gut instinct telling me something's not right. I have an appt with my regular GI because I wasn't sure if I'd get a sooner one with the other guy, who I've never seem before, but he ended up getting me in yesterday and I was gonna cancel my appt at the end of the month but im gonna keep it now that you said I should keep trying to get a real diagnosis.

So what finally made your doc say it actually was gallstones like you had suspected? Did an ultrasound finally end up showing it? Bloodwork? Just curious cuz nothing came up on my tests or blood and I'm wondering how many its gonna take for them to find it. And did you have more then one stone and if a person gets one does that make them more prone to another? What does the stones do to your gallbladder? Is that what makes the GB sick ? Going untreated after passing stones like yours did? Cuz you're the third person with a story like this... About docs missing the stones then months or years later having to remove the GB completely because it was so sick...



Quoting tossed:

I am sorry you are in distress. There are times when there is no easy answer and it takes a while to get results. My son and I both have stomach issues. He threw up 10=12 hours a day and had alternating diarrhea and constipation with severe stomach pain and cramps. He had the ph probe which is the test that goes down into your stomach and does not require anesthesia (an endoscope does) and his issue was reflux. He ended up with major surgery due to the severity.

I threw up and had alternating diarrhea and constipation with severe pain and it was caused by gallstones.

Right now, I have severe pain and tenderness and am being treated for hpylori.

I list these things because there are times when there are no clear answers and it may be a combination of conditions. In my son's case, it took months and 4 specialists to diagnose his issues. It took a year to settle on my gallstone diagnosis and even before the surgery the surgeon said that although I clearly had gallstones, he did  not think that was my problem.  yeah, it was.

Good luck. Go see another GI or go sit in the ER, but expect them to refer you to a GI.


With my son...his dr treated him with medications for GERD and irritable bowel. After a couple of months, no better. We had already made the appointment with the pedi GI...it takes a couple of months to get an appt. When he saw my son, he did not think my son was really in that kind of distress because I was calm and my son calmly explained what was happening. He was a freshman in high school. The dr, I think, assumed it was an exaggeration to avoid school. He did not know my son to know that was bogus. They ordered a repeat upper gi and a ph probe. When it came back, it showed he was refluxing at least 30% of a day...think about acid sitting in your esophagas 30% of the time. The longest recorded episode was about 40 minutes. Most people who have reflux have it go up and back down quickly, but his acid was staying in his esophagus. He had us see a pediatric surgeon. That man was a jerk and a nut. He proposed a surgery, but as I continued to question him, he admitted it had the potential to make my son much worse. There were 2 residents listening into the appt and you could see they were visibly upset. The pedi gi referred us to another pedi gi, but in another city. He met this man during his residency and the new dr is one of only 2 in the state of TX trained to deal with esophageal motility. I had my choice of him or  a dr in Houston. I selected to go to the children's hospital in Ft. Worth. He delayed some things because the hospital was to get some new software to conduct manometry studies...probe down the throat to see if the muscles are working properly...and because my son's case was so severe, they wanted the best equipment available. My son was the very first patient they used the new updated equipment on and had a rep from the biotech firm there to walk everybody there.  We have never really treated the motility issue and from what I have read, there is little they can do. My son was referred to another pedi surgeon at the children's hospital. He got upset because he knows the other surgeon and said he was going to have a talking to him. When he examined the x rays, he discoverd something that the other drs had missed. The x ray showed that his previous surgery was ripping loose. My son was scheduled for his second nissen fundoplication (surgery for severe acid reflux cases). The surgery should have taken 1-2...maybe 3 hours because this was a repeat. He was in for 5.5 hours. The surgeon has a reputation for being super fast and efficient in the OR, so 5.5 hours was incredible. He found that my son's other surgery had ripped apart and there was scar tissue around ALL of his digestive organs and had to cut through layer by layer. My son was in the hospital for a week...he was not even allowed to sit up for the first few days. He was on an epidural to help with the pain...a fantastic pain solution for kids. He missed half of his freshman year and half of his sophomore year in high school...still managed to graduate on time and is about to get his associates in respiratory therapy. He has been ill his entire life. Three days after he got out of the hospital, I had to rush him back to the children's hospital for an emergency surgery because the first food (a piece of chicken quesadilla sp?) stuck in his throat. Tough kid.

With me...My older son took me in and I told her I was having trouble eating anything and that I was throwing up when I sat up...got very nauseated just being there. I told her the funny thing was that the vomit smelled like raw fish right out of a lake. I later learned that is a symptom of liver distress. The color drained from her face and she asked if I still had my gb. I said yes and she ran down the hall to call the hospital to try to get them to do an ultrasound right then. they did one the next am and found the stones. I was referred to a surgeon. He said that although I clearly had gall stones, my "story" did not fit. He asked if I got sick when I ate greasy foods. Although i am obese, I tried to explain that I rarely ate greasy foods due to my GERD and IBS...and I had not had much other than soup or jello due to the vomiting. He made me follow a pre gastric bypass surgery diet for 2 weeks before he would operate. The morning I went in, my skin was flaking off and turning colors because I was so dehydrated. I came out of the recovery room feeling great. Evidently, my gb looked horrible and he was shocked. The story may not have fit, but my gb was really damaged. I am still having trouble...right now I am being treated for h pylori  and we think I have scar tissue around the surgery site for the gall bladder. 

tossed
by Member on Jan. 16, 2013 at 9:55 AM

Her comments on breastfeeding were totally out of line and she should have kept her mouth shut on that. It would be one thing if she told you that you had a serious reason to discontinue bf..but her opinion was uncalled for. I bf one son for a year. I stopped with the other after 9 weeks because I was having a lot of physical issues (my c section incision ruptured and I got a massive infection) and was super depressed. I made the decision to take antidepressants and had to discontinue bf. It was tough and wish I had continued breastfeeding.

Congrats on your sobriety! That is awesome. I lost my bff due to a death caused by a mixed drug reaction. 

Believe me, I have seen some doctors who are real jerks and should not be allowed the power a dr has. JERKS. I have also been blessed with a few who are the most incredible people on earth.

I feel like I get dismissed because I have lupus, rheumatoid arthritis, and fibromyalgia and when I say something hurts, it is like, "Yeah, so what else is new. Must be the lupus."

I hope you get an answer soon. I know I feel better when I just know what is going on...

Quoting xxshelbyxxx:

Yeah you're probably right about the doctor an the way she handled things, but often I feel like doctors don't take my issues seriously because I'm a recovering drug addict. I'm never seeking pain meds though, I've never once been prescribed pain meds or asked for them. I'm just a two year sober mom whose body unfortunately has some permanent damage from the 3 years straight of drug use with no hygene or medical attention.

But anyway, there's another reason my current doc kinda bothers me, something she said awhile back. My son was a year old and I told her how I was diagnosed with IC but couldn't take meds for it til I was done nursing, and she raised her eyebrows and goes 'well anything past 6 months is unnecessary anyways, you just nurse him for comfort now right?' And I said no he still nurses for food actually and she said 'well I think it's time you start thinking about yourself, he'll be fine.' And I know you'll probably say the same thing you said about the first reason my doc bothered me, which is fine because you're probably right, but some things offend me and don't need to come out of a doctors mouth. So anyways; back to the stomach problems. Sorry. I rant and vent too much.

So yours was cysts that weren't diagnosed for a super long time? And you have IBS? Cuz I'm starting to believe that first bout of serious pain I had was a gallstone passing because that'd make sense that they didnt see it in a ULtrasound two days later. Plus I haven't pain like that since that day, that four hour horrible period. I still have random stomach aches, pains, gas, bloating though, which is why I KNOW something else is going on and wish someone could help me sooner!

And yea I heard you can get colonoscopies done without the numbing agent because my ma never had anesthetic when she had hers but that was over 10 years ago. I'm assuming my doc doesn't even do them without knocking you out cuz he didnt even offer to do it without; even though I know it can be done. So did it hurt without the anesthesia?


Quoting tossed:

I have had probably 15 cysts and they did not always show on ultrasound.

Some of what you describe sounds like irritable bowel syndrome. The looping of pain sounds like you are tracing your digestive tract which does loop into lower abdomen. When I have bad attacks, I swear it huts like labor pains and doubles me over, leaves me nauseated and in extreme pain. I take bentyl for it...a muscle relaxer of the smooth muscles of the digestive tract.

On the colonoscopy...not all drs use anesthesia. I have had several due to my conditions and have only had anesthesia once. When I was pregnant, they did a flexible sigmoidoscopy (does not go as high up) because it was less invasive, but they needed to check my colon.

I would not be overlyy critical of the dr for not suggesting a GI on the first trip...a primary care physician is considered a "gate keeper" in the medical community. They are there to treat most things and only refer a person to a specialist when a case becomes more complex or for certain conditions. She would not know that until getting your test results, which were negative. Also, you had a period of time when you were better. She did mention a specialist when you called back. Her behavior really seems reasonable given the current protocol of medicine in the US. 


Quoting xxshelbyxxx:

Omg see!? That's so scary! Because I swear I feel like something HAS to be wrong or else i wouldn't have frequent stomach problems ya know? That's why I don't understand how my doc could just kinda 'let it go' after my tests came back normal, like why wouldn't she suggest going to a Gi doc or like another mom on here suggested, starting a food journal to see if I'm lactose or gluten intolerant? It's like she just brushed it off as gas since my tests were normal...



So with your cysts, how long or how many tests did it take for them to find them and was it in an ultrasound that they eventually saw them? And also, were you having the same kinda symptoms I get? Because its not even JUST my stomach half the time, it's like under my stomach above my pubic line and all the way across horizontally and there will be hard lumps that ache sometimes and hurt to press on. And the spasms go throughout my entire stomache, back and lower region, even my b hole when I try to pool or fart.



Sorry for typing so much I'm just trying to get to the bottom of this and asking you ladies questions is helping me get a little clearer picture. So thank you





Quoting TerriAnne2606:

Mine did not.  



Quoting xxshelbyxxx:

That's what I was thinking when I looked online the other day for my symptoms because the cysts had one symptom I have that no other illness had listed.. But I assumed they'd show up on a ultrasound... You're saying they don't?








Quoting TerriAnne2606:

Okay -just brainstorming. What about a cyst on an ovary?  I know how truly painful that is and yet they cannot see anything when I have them on xray or ct scan or mri...  Again - just brainstorming...  

Hugz




Quoting xxshelbyxxx:

No no no no it's not that I promise you! I'd be DYING from pain if it were that. Like I said in my OP, the pain I'm having now isnt even the same pain as the time before Xmas that I went to the doc for, that was debilitating, this I can handle, I'm just confused cuz if nothing came up on my tests then WHAT could be causing this!?











Quoting TerriAnne2606:

Appendicitis?  I'd go to the ER - make your mom go to work late or Tim come home NOW to take you.















Add your quick reply below:
You must be a member to reply to this post.
Join the Meeting Place for Moms!
Talk to other moms, share advice, and have fun!

(minimum 6 characters)



Featured