Join the Meeting Place for Moms!
Talk to other moms, share advice, and have fun!

(minimum 6 characters)

Advice for Moms Advice for Moms

Baby diagnosed with terminal Metachromatic Leukodystrophy

Posted by on Feb. 1, 2013 at 8:49 AM
  • 20 Replies

Please, if anyone here knows or has dealt with this terminal illness, please help my friends and their baby... 

http://www.myfoxtampabay.com/story/20917134/2013/01/31/hoping-to-find-a-miracle-on-social-media


We are hoping to get the word out and find anyone who can help them... or any doctors or alternative medicines... anything. 



by on Feb. 1, 2013 at 8:49 AM
Add your quick reply below:
You must be a member to reply to this post.
Replies (1-10):
LucyHarper
by on Feb. 1, 2013 at 8:51 AM
1 mom liked this

Contact CTCA, I've seen them work miracles before.

amonkeymom
by Silver Member on Feb. 1, 2013 at 2:20 PM

I'm so sorry for your friends and their little one.

hopealways4019
by Bronze Member on Feb. 1, 2013 at 2:30 PM
I'm sorry, wish I could help. I suggest Googling illness, see how much info can get.
Posted on the NEW CafeMom Mobile
stepdiva
by on Feb. 1, 2013 at 2:36 PM
1 mom liked this
St Jude.
Posted on the NEW CafeMom Mobile
la_bella_vita
by Gold Member on Feb. 1, 2013 at 2:40 PM

 I'm sorry : (

AtillaTheHun
by Member on Feb. 1, 2013 at 2:42 PM
I'm so sorry for your friends and the little one. I can't help but here is a bump.
Posted on the NEW CafeMom Mobile
heartfelt3
by on Feb. 1, 2013 at 2:56 PM
Google ,St.Jude contact them they would be able to help or Easter Seal
DaniandTom
by Bronze Member on Feb. 1, 2013 at 3:17 PM

So sad. My heart goes out to them. I wish I could help but I will keep them and their little girl in my prayers. ♥Hugs♥

yperez0209
by on Feb. 1, 2013 at 3:31 PM

How long has the child had this or developed symptoms?

lovegrandbaby
by on Feb. 1, 2013 at 3:59 PM

I would also suggest someplace like St. Judes or the Mayo Clinic.  If they cannot help, they may know a specialist that can.

Add your quick reply below:
You must be a member to reply to this post.
Join the Meeting Place for Moms!
Talk to other moms, share advice, and have fun!

(minimum 6 characters)