What would you do if your child had Locked In Syndrome?
I was watching TV and saw a program about it. It sounds so horrible, not being able to talk or move your body. I don't even think having cancer sounds quite as bad. :( I couldn't imagine the pain they are in or the pain their parents and family feel.
I think if my son was locked in I'd spend as much time as I could with him. I'd probably find a way to work from home if he was well enough to stay at home and not be in the hospital.I'd take care of him for as long as I'm alive and I'd give him lots of hugs and kisses and play all his favorite music and TV shows. I know if I couldn't move, it would comfort me a lot seeing my family and friends express their love for me even if I couldn't express my gratitude and how much I love them in return.
If my son was in a coma I definitely couldn't have the plug pulled because there's always a chance they might be aware of what's going on.