This has been an ongoing problem.My daughter was born with her father's heart condition Long QT Syndrome.It's managed by beta blockers and they gave her an ECG every 6 months for the first 2 years of her life,as well as getting her to wear a holter (a portable version of the ECG) for 24 hours, from now on it will be once every 12 months.
We had her latest cardiologist appointment yesterday and didn't she just LOSE.HER.SH*T!It was insane,it was a nice lady putting the stickers on her chest,she had ABC4Kids playing,DD had her favourite stuffed animal, NOTHING soothed her and the poor woman eventually said there was no way they could get an accurate reading with her going off so bad.So she attached the holter stickers and cords etc,DD lost it again,trying to get it off her.We eventually calmed her down,reassuring her that it would come off tomorrow (man didn't I have fun trying to get it in a position she was happy to sleep with it in!).Then she freaked out when we went in the cardiologist's office,probably thinking he was going to do something as well.Thankfully we only needed to chat about weight gain and whether her meds needed to be increased or not.
It was soooooo much easier when she was a baby,I have a photo of her at about 2 months old,looking curiously at all the ECG cords all over her lol.Hopefully by Oct next year she'll be able to understand it better when I explain it to her (I also planned on getting her a little medical kit with stethascope etc,make it a game maybe?)but yeah I figured it couldn't hurt to ask if any of you have gone through anything similar and have any ideas for me to try out at her next visit?Thanks in advance :)