Does anyone's child have scoliosis?
My 10 month old, Krissy, has scoliosis. SHe is in a cast to keep her straight and to get her spine to grow the correct way. We found out a few months ago. Thank God we found out AFTER I left her father or else I'd still be in a bad relationship. Her father considers her special needs and disabled. I don't. It is just a condition that will take a long time to fix. The doctor seems determined to not only "fix it" but to completely heal it.
I have a strong little girl. She has learned to adapt. Instead of crawling normally, she crawls on her back. Let me tell you, she gets around FAST! She is happy and otherwise healthy. She has started PT every other week when she is at my house. I am passing on it in two weeks because she will be in a new cast and for the first week she is a little sore. I don't want to over due it. She will be able to walk and do everything her big sister does.
I want nothing more than to take her swimming or give her a bath. I hate giving her spongebaths, but try to make it fun. I will sing her stupid little songs while I'm washing her hair like in a salon. She just smiles and "sings" along with me.
There really isn't a point to this post, but I guess if another mom just found out their child needs casting, they won't feel alone. I have found a wonderful support group, but all of the women live so far away and is not on cafemom. I'm saving up money to get Krissy this vest with ice packs so I can atleast take her to the park and not worry as much about her getting to hot.
If you see a child in a cast, don't judge. Kids normally don't notice, but we do. I've had people ask me what's wrong with her. I don't mind that. I mind when people laugh at her or when I hear them say she must have been in an accident or abused. I would rather her be in a cast than spine surgery twice a year.
She is gorgeous! I do not have a child with scoliosis but I have a sister with it. We didn't know until she was older and she had been compensating for a leg that was over an inch shorter than the other leg... she has to wear shoe inserts, etc still and still has some issues... she is 25 now. I hope that catching it this early and beginning treatment will mean her life can be normal and easy (as easy as anyone's is) rather than painful.
I can't believe people judge when they see young children, etc in casts. My 4 yr old (VERY observant) DOES notice these differences and generally, I can answer that God made all people and we are all different and He loves us all (wheel chair bound people, chronic conditions, etc) or that the person/child is healing from something and needs the casting to help keep that part of the body still so God can work to heal it.
We had no other choice. The curve was right where her lungs are. Her life would have been shortened. I'm just glad she is young enough that she doesn't really know what is going on.l Her big sister "helps" her. Really she just throws toys on her, but is very gentle with the cast.
Hang in there, I know it isn't easy! She is so lucky to have a you as a mom! :)
Michelle
www.bambinibiz.blogspot.com
Hi, I enjoyed reading your post. I love to hear others stories of scoliosis.
Our daughter was diagnosed at 6 years old. She has had 5 braces and then spinal fusion surgery at age 17. She has made a video and a blog to help others going through this. She has been a tough kid all the way through this journey and is determined that she was chosen to go through this to help others facing the same thing. We met a family at Shriners when Katie was having her surgery and their infant son was going through the casting process. She has a link to his website on her bolg. Please look it up and hopefully it could be of help to your family. http://scoliosis-braceyourself.blogspot.com/
How did you announce your pregnancy?
- towerjunkie1989
on Jul. 25, 2011 at 11:20 PM