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Anencephaly- The worst news we have ever had.

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Baby is doing well inside there. He is very active. I have another US on the 21st to check on my fluid levels. VERY active baby. I am doing okay just a rough rut emotionally. We have decided to carry to term so that we can say our goodbyes. We will cremate as well. I am happy that we decided to carry and we can say goodbye and be at peace with it. I am still coming to terms with the fact that we will not be coming home with a baby. =[

 orig post:

I went in to my doc today for a regular OB appt. She was great then talked to me and asked if I would like to have the early US for down syndrome.I said sure! I was able to get into the US immediately. I found out the most devastating news I have ever heard.

My baby has no brain. My baby will not live. I have the option to terminate or have complications with pregnancy later or..possible hemorrhage durring birth and as soon as I go into labor my baby will die. The correct term for this is Anencephaly. We are going on the 13th to get the process started. I feel dead inside.

ETA- I am going Monday to another specialist to "be sure" but we already know after seeing 2 docs that this is what is going on..Please respect my decision on what we are doing. I keep seeing comments like how babys live for a few years with this. Well IF my baby lived, it would be a vegetable. And for those saying- Check your options- There are two options :

1- my body will produce more amniotic fluid than normal. This can cause my uterus to expand more than a normal pregnancy and I can hemmorage when I deliver. I will chance my life. My baby will die either way.

2- Induce to terminate. And try for another baby in the future.

Please respect my decision. You do not know what you would do unless this happened to YOU and your family personally.

by on Feb. 7, 2013 at 3:15 PM
Replies (11-20):
by on Feb. 7, 2013 at 4:22 PM

My heart hurts for you.  My friend's baby had this along with other abnormalities, she terminated in August 2011. I've seen her devastated by it, but also grow from it. Stay stong <3

by Melissa on Feb. 7, 2013 at 4:22 PM

I didn't know such thing heart breaks for you and your little family!  My thoughts and prayers are with you.  I hope you can find strength during this time.

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by on Feb. 7, 2013 at 4:27 PM
So sorry mama that is so sad. I will be praying for your family.
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by on Feb. 7, 2013 at 4:39 PM

((((hugs))))) I am so sorry hun.

by Member on Feb. 7, 2013 at 5:01 PM

I'm so so sorry Bre. -hugs-

by on Feb. 7, 2013 at 5:06 PM

im so sorry.

by on Feb. 7, 2013 at 5:08 PM
I am so sorry :( I have been there. We were told my DS had severe Spina Bifida and less than half a brain. It was the worst day of my life.
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by Member on Feb. 7, 2013 at 5:09 PM


Quoting Yogamom08:

I am so sorry. I don't have words....

Please type "Loving London" in to google and look for the Facebook page. This couple has just gone through the loss of their child from the same condition. I would definitely get some support from people who have gone through thus

 This is a beautiful and precious tribute to their little boy! Please take time to look at may give you some hope and peace.

by on Feb. 7, 2013 at 5:18 PM
there's another lady in this group who just went through this.
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by Bronze Member on Feb. 7, 2013 at 5:35 PM

 oh gosh, im so sorry to hear that! :( Hugs mama!

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