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Anencephaly- The worst news we have ever had.

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UPDATE 3/13

Baby is doing well inside there. He is very active. I have another US on the 21st to check on my fluid levels. VERY active baby. I am doing okay just a rough rut emotionally. We have decided to carry to term so that we can say our goodbyes. We will cremate as well. I am happy that we decided to carry and we can say goodbye and be at peace with it. I am still coming to terms with the fact that we will not be coming home with a baby. =[



 orig post:

I went in to my doc today for a regular OB appt. She was great then talked to me and asked if I would like to have the early US for down syndrome.I said sure! I was able to get into the US immediately. I found out the most devastating news I have ever heard.

My baby has no brain. My baby will not live. I have the option to terminate or have complications with pregnancy later or..possible hemorrhage durring birth and as soon as I go into labor my baby will die. The correct term for this is Anencephaly. We are going on the 13th to get the process started. I feel dead inside.


ETA- I am going Monday to another specialist to "be sure" but we already know after seeing 2 docs that this is what is going on..Please respect my decision on what we are doing. I keep seeing comments like how babys live for a few years with this. Well IF my baby lived, it would be a vegetable. And for those saying- Check your options- There are two options :

1- my body will produce more amniotic fluid than normal. This can cause my uterus to expand more than a normal pregnancy and I can hemmorage when I deliver. I will chance my life. My baby will die either way.


2- Induce to terminate. And try for another baby in the future.


Please respect my decision. You do not know what you would do unless this happened to YOU and your family personally.




by on Feb. 7, 2013 at 3:15 PM
Replies (131-136):
KMS8907
by on Mar. 13, 2013 at 8:51 PM
I was just going to mention that. The company I found is called now I lay me down to sleep and they do it free.

We're all here for support Hun and in glad your getting to experience those movements. It will be treasures you can keep forever. You are super courageous and have strength I don't know anyone could have. But I'm always here for an ear if you need it.


Quoting michiganmom5150:

I'm so sorry. I don't know if you'd be interested, but there are some photographers who will come to the hospital and take pics so you at least have that memory. My friends did this and found it a great comfort to have something to remember their baby girl. You and your family are in my prayers.
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michiganmom5150
by on Mar. 14, 2013 at 12:41 AM
I do remember them saying it was free. They got beautiful pics of their baby to treasure. OP, I am so sorry, the thought just makes me tear up. Treasure this time and these moments you have. *Hugs*


Quoting KMS8907:

I was just going to mention that. The company I found is called now I lay me down to sleep and they do it free.



We're all here for support Hun and in glad your getting to experience those movements. It will be treasures you can keep forever. You are super courageous and have strength I don't know anyone could have. But I'm always here for an ear if you need it.




Quoting michiganmom5150:

I'm so sorry. I don't know if you'd be interested, but there are some photographers who will come to the hospital and take pics so you at least have that memory. My friends did this and found it a great comfort to have something to remember their baby girl. You and your family are in my prayers.

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HollieMariex3
by on Mar. 14, 2013 at 12:44 AM
I'm so sorry. 3 years ago I found out my daughter had Holoprosencephaly which is quite similar - her brain never split into two hemispheres and she would never live a viable life. This usually comes with severe deformities but she had none which let me to get a 2nd, 3rd, and 4th opinion along with canceling 3 inductions. I ended up getting induced at almost 21 weeks and she was alive for 5 hours before she passed. If you need anybody to relate to let me know and we can talk.
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nunubans
by on Mar. 14, 2013 at 12:56 AM
Jesus Christ! I am so sorry, I can not imagine what you and your family are going thru. I don't even know what to say, please please get counselling after this and may the baby's soul rest in peace and may you find peace and happiness again. May the good Lord bless you and your family with a healthy baby next time.
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kelly617
by Silver Member on Mar. 14, 2013 at 1:46 AM

I'm so sorry hon...I think its great that you'll get to say your goodbyes
I saw another poster put it up already...but check out the facebook "loving landon" I sobbed the whole time..there was just so much love

lucyblue202
by Member on Mar. 16, 2013 at 12:58 AM

I am so sorry. This is so heartbreaking & I can't imagine what you are going through. I respect your decision. I pray that you are able to heal and be at peace. xo

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