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Anencephaly- The worst news we have ever had.

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Baby is doing well inside there. He is very active. I have another US on the 21st to check on my fluid levels. VERY active baby. I am doing okay just a rough rut emotionally. We have decided to carry to term so that we can say our goodbyes. We will cremate as well. I am happy that we decided to carry and we can say goodbye and be at peace with it. I am still coming to terms with the fact that we will not be coming home with a baby. =[

 orig post:

I went in to my doc today for a regular OB appt. She was great then talked to me and asked if I would like to have the early US for down syndrome.I said sure! I was able to get into the US immediately. I found out the most devastating news I have ever heard.

My baby has no brain. My baby will not live. I have the option to terminate or have complications with pregnancy later or..possible hemorrhage durring birth and as soon as I go into labor my baby will die. The correct term for this is Anencephaly. We are going on the 13th to get the process started. I feel dead inside.

ETA- I am going Monday to another specialist to "be sure" but we already know after seeing 2 docs that this is what is going on..Please respect my decision on what we are doing. I keep seeing comments like how babys live for a few years with this. Well IF my baby lived, it would be a vegetable. And for those saying- Check your options- There are two options :

1- my body will produce more amniotic fluid than normal. This can cause my uterus to expand more than a normal pregnancy and I can hemmorage when I deliver. I will chance my life. My baby will die either way.

2- Induce to terminate. And try for another baby in the future.

Please respect my decision. You do not know what you would do unless this happened to YOU and your family personally.

by on Feb. 7, 2013 at 3:15 PM
Replies (31-40):
by on Feb. 7, 2013 at 8:25 PM
This is a great story :) i have them on fb. Im sorry thatyou got this news today

Quoting cjsix:


Quoting Yogamom08:

I am so sorry. I don't have words....

Please type "Loving London" in to google and look for the Facebook page. This couple has just gone through the loss of their child from the same condition. I would definitely get some support from people who have gone through thus

 This is a beautiful and precious tribute to their little boy! Please take time to look at may give you some hope and peace.

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by on Feb. 7, 2013 at 8:26 PM
I'm so sorry!!
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by on Feb. 7, 2013 at 8:36 PM
There are no words. How devastating.
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by Bronze Member on Feb. 7, 2013 at 8:38 PM

OMG i'm soooo sorry. i wanna say someone in the miscarriage group had that happen to her baby also :(

by on Feb. 7, 2013 at 8:59 PM
sorry to hear about this
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by on Feb. 7, 2013 at 9:01 PM
I'm so sorry. There is a lady in the miscarriage and pregnancy loss who carried her daughter to term with this condition. There is lots of support there if you want it.

Hugs and prayers. I'm so so sorry :-(
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by on Feb. 7, 2013 at 9:43 PM
There was a girl I know that just lost her little girl 2 weeks ago to the same thing. She was born at 21 weeks. I also follow loving Avalyn on facebook, their daughter has the same thing and they are continuing the pregnancy. I'm so sorry hun. I'm so so sorry
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by on Feb. 7, 2013 at 10:37 PM

there are no words... i am so sorry....

by Amber on Feb. 7, 2013 at 11:02 PM

I've been hearing about this happening more and more lately. It's so sad, so heartbreaking. I know many women choose to induce early labor or terminate to avoid the baby suffering even more during labor/birth. 

It's an unfortunate birth defect and it is unavoidable, I think. I'm so sorry your family has to endure this hardship. Will you be getting another ultrasound just to be completely sure?

by on Feb. 7, 2013 at 11:05 PM

I'm so very sorry to hear that, hun.  I'll be praying for you.  :(

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