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Anencephaly- The worst news we have ever had.

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Baby is doing well inside there. He is very active. I have another US on the 21st to check on my fluid levels. VERY active baby. I am doing okay just a rough rut emotionally. We have decided to carry to term so that we can say our goodbyes. We will cremate as well. I am happy that we decided to carry and we can say goodbye and be at peace with it. I am still coming to terms with the fact that we will not be coming home with a baby. =[

 orig post:

I went in to my doc today for a regular OB appt. She was great then talked to me and asked if I would like to have the early US for down syndrome.I said sure! I was able to get into the US immediately. I found out the most devastating news I have ever heard.

My baby has no brain. My baby will not live. I have the option to terminate or have complications with pregnancy later or..possible hemorrhage durring birth and as soon as I go into labor my baby will die. The correct term for this is Anencephaly. We are going on the 13th to get the process started. I feel dead inside.

ETA- I am going Monday to another specialist to "be sure" but we already know after seeing 2 docs that this is what is going on..Please respect my decision on what we are doing. I keep seeing comments like how babys live for a few years with this. Well IF my baby lived, it would be a vegetable. And for those saying- Check your options- There are two options :

1- my body will produce more amniotic fluid than normal. This can cause my uterus to expand more than a normal pregnancy and I can hemmorage when I deliver. I will chance my life. My baby will die either way.

2- Induce to terminate. And try for another baby in the future.

Please respect my decision. You do not know what you would do unless this happened to YOU and your family personally.

by on Feb. 7, 2013 at 3:15 PM
Replies (41-50):
by Silver Member on Feb. 7, 2013 at 11:47 PM
I remember reading her posts. Isn't her LO still alive?

Quoting x_Starr_x:

there's another lady in this group who just went through this.

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by Amy on Feb. 7, 2013 at 11:52 PM

((hugs)) I am so sorry hun. 

by Member on Feb. 7, 2013 at 11:52 PM

There are no words....I am so so sorry :'(

I don't know if you pray, but I will be sending your family love and positive thoughts xoxo

by on Feb. 7, 2013 at 11:54 PM
I am so sorry.
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by Mandy on Feb. 8, 2013 at 12:46 AM
1 mom liked this

I am so sorry. I'll be praying for you.

I know someone who's baby had anencephaly as well. She was able to carry to term and their baby lived for most of the day. They were able to meet her and take pictures and hold her the whole time. I just say this to let you know there are options.

by on Feb. 8, 2013 at 1:23 AM
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by Bronze Member on Feb. 8, 2013 at 1:37 AM

i truly can't imagine what you're feeling.  i'm so sorry. 

by on Feb. 8, 2013 at 1:51 AM

my heart breaks reading this story. i work with someone whos fiance has the same thing. i am so sorry :(

by on Feb. 8, 2013 at 1:55 AM

My heart goes out to you. I am so sorry.

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