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Pregnancy Pregnancy

Im 21 weeks pregnant and my nerves are going a mile a minute!!!!

Posted by on Apr. 8, 2014 at 6:39 PM
  • 11 Replies

I am 21 weeks and nerves are going all over the place.  Back story I have a 8 year old who has autism and had open heart surgery to close heart murmurs.  My 6 year old has PKU (metabolic condition that limits what she eats and we have to monitor it really well if he levels go to high she could have seizures or worse). She also has autism.  Our youngest has had 3 open heart surgery's for a life long condition called hypoplastic left heart syndrome, a rare congenital heart defect in which the left ventricle of the heart is severely underdeveloped.  Now all three of my children were a form of birth control.  And yes i was using the birth control correctly.   Now I have been off birth control for almost two years and not able to be on birth control due to my cysts.  I ended up pregnant.  My husband has a latex allergy we had a tried other forms but there were issues with both.  Due to my cysts and the medications I had not had a period in almost a year in a half.  But I am pregnant.  I wanted to have my tubs done after my youngest but due to the Hypoplastic left heart syndrome and that there could be complications and my son might not make it the doctor would not sign off and let me.  I have gone to a few other doctors but could not get doctor approval.  You would think that with all the medical needs of my children that I could get this done.  Now you may ask why my husband is not fixed.  To many issues to list but he has a medical issue that makes it hard to have any surgery and the doctors would not approve it for him.  Long story short I am now 21 weeks and I go in for my first ultra sound and this one will be a more in depth untra sound then you normally have done at this stage.  They will be looking closely at his heart and other areas looking for deformities.  This coming thursday I am going in for the ultra sound.  I am looking forward to another baby but the unknown about the health of the baby is now getting to me.  I have been good tell now but now the apt is just a few days away.  I am not sure what to expect and i am praying and hoping for the best.  But the nerves are getting to me I have not had a good night sleep in a few nights.  I am looking forward to the posibility of finding out boy or girl but not sure what to expect other then that.  


by on Apr. 8, 2014 at 6:39 PM
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Replies (1-10):
DeNaeMama
by Member on Apr. 8, 2014 at 7:42 PM
My goodness sweetie you have a lot to handle, seems like you are doing it with grace! I applaud you. I am 13 weeks tomorrow and very high risk I had my 9 yr old at 25 weeks 4 days 1 lb 15.3 oz 3 1/2 month NICU stay and she has spastic diplegia cerebral palsy. I waited ten years to get pregnant again (not planned total surprise). I can sympathize with you on nerves going all over place, I am anxious and can't help but have that in the back my head voice of another preterm labor and having two kids with disabilities. Granted my doctor is awesome and taking every precaution such as progesterone shots weekly start in at 16 weeks and cervix checks every 4 weeks make sure no dilation or shortening and worse case will stitch that baby closed. Hang in there I am sending lots of hugs prayers and love for all you babies. Easier said than done but try and think positive and think of a healthy baby with no complications growing inside of you! That's what I try to do :)! 💞
MixedCooke
by on Apr. 9, 2014 at 2:50 AM

Im going to ask the hard question--why didnt you have an abortion? Given the recurring history of autism and birth defects, the likelihood of this one having future problems are apparent.  why not try another method of birth control such as the IUD or something similar?  i dont have half your problems but my nerves are shot as well, so if i were you, I would DEFINITELY be highly concerned.  Good luck!  Hope for the best but prepare for the worst.

Ilovemybbgrl
by Bronze Member on Apr. 9, 2014 at 2:58 AM
*sigh* I think we all have thoughts whether our kids are completely healthy or not. I was always afraid if they would be deaf or blind or what have you. You have a fairly in depth history with your children I can only imagine the uncertainty you must feel right now. Knowledge is a powerful thing. You will then know and be able to make decisions. Have you already thought what you will do should this baby also have something going on?
chickensmommy
by Member on Apr. 9, 2014 at 7:10 AM
Have you considered a consult with a genetics counselor to see what you are up against?
PKU_MOM
by New Member on Apr. 9, 2014 at 11:21 AM
1 mom liked this
I dont believe that abortion is a option. Plus my husband would not agree and he would of left me over it. When I found out I was pregnant with our oldest we talked about ending it for a nano sec long enough for him to say over his dead body. I did say we could still look at ending it he said nope still was a no. I have been on every kind of birth controls nova ring pills shots inplanon the patch diaphragm IUD not one worked or I had complications with them. I developed cervical cysts about two years ago thats when the IUDcame out. I had asked about other forms of birth control being used to as a back up but due to the cysts my doctor said no to any thing. That will mess with meds that will sit on the cyst so no. We newk nothen is 100% but we also new there was a chances but then I stopped having period not spotting nothen. We were still not convinced it would not happen we used the ovulation home kits be for hand but it still happened. We will make it threw we have such a great family my inlaws go deep and I may not be the favorite but I am accepted. My mil will be on the first flight when my water breaks. My parent and other family are always helping and we have great friends. We will be fine but the in the moment feeelings dont change. The unknown is the worst. Thanks. I .

Quoting MixedCooke:

Im going to ask the hard question--why didnt you have an abortion? Given the recurring history of autism and birth defects, the likelihood of this one having future problems are apparent.  why not try another method of birth control such as the IUD or something similar?  i dont have half your problems but my nerves are shot as well, so if i were you, I would DEFINITELY be highly concerned.  Good luck!  Hope for the best but prepare for the worst.

PKU_MOM
by New Member on Apr. 9, 2014 at 11:35 AM
2 moms liked this
Thank you and ill keep you in my thoughts. Its amazing these sights. When I had my son and ill the uncertainty when they sent me to a specialist my friends had no clue there nothen to worry about. I was worried my other two I did not go to a specialist no one got how pregnancy are not always a walk in the park some are harder then what you think of when you think pregnancy.

Quoting DeNaeMama: My goodness sweetie you have a lot to handle, seems like you are doing it with grace! I applaud you. I am 13 weeks tomorrow and very high risk I had my 9 yr old at 25 weeks 4 days 1 lb 15.3 oz 3 1/2 month NICU stay and she has spastic diplegia cerebral palsy. I waited ten years to get pregnant again (not planned total surprise). I can sympathize with you on nerves going all over place, I am anxious and can't help but have that in the back my head voice of another preterm labor and having two kids with disabilities. Granted my doctor is awesome and taking every precaution such as progesterone shots weekly start in at 16 weeks and cervix checks every 4 weeks make sure no dilation or shortening and worse case will stitch that baby closed. Hang in there I am sending lots of hugs prayers and love for all you babies. Easier said than done but try and think positive and think of a healthy baby with no complications growing inside of you! That's what I try to do :)! 💞
PKU_MOM
by New Member on Apr. 9, 2014 at 11:41 AM
We have but there's not much of my biological family history to go off as I am adopted and I have attempted to get to know my bio family but most are crazy. Dads side there a lot of healthy people. My blood work has not show anythink. Nor the husbands. We have a meeting with the genetic group of doctors after the ultra sound. I am hoping for a healthy baby and not much to talk about.

Quoting chickensmommy: Have you considered a consult with a genetics counselor to see what you are up against?
wiccanlove92
by Bronze Member on Apr. 9, 2014 at 12:49 PM
1 mom liked this
I'd definitely be nervous if I were you. Good luck, hope baby is healthy
antiquehearts
by on Apr. 9, 2014 at 1:13 PM
1 mom liked this
I have had two easy pregnancies, which gave me two perfectly healthy kids, which is a huge blessing. Now i am 22weeks along with my third baby and my ultrasound revealed that he has gastroschisis. To give you the short definition, he has a hole in his belly and his intestines, possibly his stomach and/or liver are forming on the outside of his body, and will be on the outside of his body at birth. It's hard to determine how severe/complex it will be until he makes his way into the world, but even in the best case scenario, He will need surgery immediately after leaving my womb and will require a lengthy NICU stay. It's a long road ahead but the fight will be so worth it. Best wishes to you and your family and I hope you get the answers you need. The not knowing is the scariest part.
Tenderheart3
by Bronze Member on Apr. 9, 2014 at 1:41 PM
1 mom liked this

Try to stay calm.  I bet when you think about your 3 children, you have seen what a blessing they truly are.  You probably couldn't image life without them, even with all their health challenges.  Know that whether this baby has a health issue or not this child will bless your life.  Your children are precious and their lives have a purpose.  Many people think that children with health challenges are defective or an inconvenience.  This is a lie. They were created by God to make a difference in the world.  Everything will work out :-)

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