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Toddlers & Preschoolers Toddlers & Preschoolers

Congenital myotonia? Help! (PIOG)

Posted by on Oct. 1, 2012 at 6:19 PM
  • 5 Replies
We just got back from Molly's follow-up appointment on her hand xrays. The radiologist noted "congenital myotonia" in both hands. The doctor is unfamiliar with it and was calling other doctors....but we googled it together but there are so many different types. He will do some research and get back to me. Is anyone familiar with this? I see some cases that are not scary and others are fatal...with lots in between.
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by on Oct. 1, 2012 at 6:19 PM
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Replies (1-5):
Mommy2JAJ
by Member on Oct. 2, 2012 at 7:12 AM
I am not familiar with this but here's Bump for you
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2boys9yrsapart
by on Oct. 3, 2012 at 4:15 PM
http://en.m.wikipedia.org/wiki/Myotonia_congenita

Idk if you looked here or not. I know it's Wikipedia but it's a start. Good luck your LO will be in my prayers.
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PEEK05
by on Oct. 4, 2012 at 11:13 AM

No not me, sorry.  Here is a bump.

Jenn8604
by Jennifer on Oct. 4, 2012 at 11:14 AM
No clue. Heres a bump.
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.Angelica.
by Angie on Oct. 4, 2012 at 4:25 PM

i've never heard of it.

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