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Scaphocephaly Anyone ever deal with this?

Posted by on Jan. 16, 2014 at 4:45 PM
  • 9 Replies

I'm posting everywhere... I'm going insane. I'm unable to locate anyone that had to go through this with their baby. My toddler needed a helmet, but my two month old needs cranial surgery.

anyone?

Ive done tons of research, but would like to talk to someone that's been through it.

thanks

by on Jan. 16, 2014 at 4:45 PM
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Replies (1-9):
MommyO2-6631
by on Jan. 17, 2014 at 11:43 AM
1 mom liked this
If you haven't found anyone to talk to this about I would send a friend request to navyjen. Her daughter Kaiya, i think, is about 19 months and went through the reconstruction about 8-9 months ago. She's in my due date group. *hugs*
nkki954
by Member on Jan. 17, 2014 at 4:17 PM
1 mom liked this

Thank you

Quoting MommyO2-6631: If you haven't found anyone to talk to this about I would send a friend request to navyjen. Her daughter Kaiya, i think, is about 19 months and went through the reconstruction about 8-9 months ago. She's in my due date group. *hugs*


maxswolfsuit
by on Jan. 17, 2014 at 8:59 PM

I don't know anyone who has gone through this. 

Have you asked in other groups? 

maxswolfsuit
by on Jan. 17, 2014 at 9:00 PM
1 mom liked this

I saw your post in MC. 

I bumped it for you. 

nkki954
by Member on Jan. 17, 2014 at 9:01 PM

I've searched and searched.. Posted in the groups I'm apart of.

thanks though

Quoting maxswolfsuit:

I don't know anyone who has gone through this. 

Have you asked in other groups? 


maxswolfsuit
by on Jan. 17, 2014 at 9:03 PM

Are there any sites just devoted to it online like on facebook or anything?

I don't know how rare it is, but it seems like there must be groups for parents dealing with it. 

Quoting nkki954:

I've searched and searched.. Posted in the groups I'm apart of.

thanks though

Quoting maxswolfsuit:

I don't know anyone who has gone through this. 

Have you asked in other groups? 



nkki954
by Member on Jan. 17, 2014 at 9:05 PM

I started looking and there are some, but once their kids are corrected from the surgery they leave the groups.

im still on the lookout. And hopeful.

Quoting maxswolfsuit:

Are there any sites just devoted to it online like on facebook or anything?

I don't know how rare it is, but it seems like there must be groups for parents dealing with it. 

Quoting nkki954:

I've searched and searched.. Posted in the groups I'm apart of.

thanks though

Quoting maxswolfsuit:

I don't know anyone who has gone through this. 

Have you asked in other groups? 




maxswolfsuit
by on Jan. 17, 2014 at 9:12 PM

Good luck!

I hope you find someone to talk to :)

Quoting nkki954:

I started looking and there are some, but once their kids are corrected from the surgery they leave the groups.

im still on the lookout. And hopeful.

Quoting maxswolfsuit:

Are there any sites just devoted to it online like on facebook or anything?

I don't know how rare it is, but it seems like there must be groups for parents dealing with it. 

Quoting nkki954:

I've searched and searched.. Posted in the groups I'm apart of.

thanks though

Quoting maxswolfsuit:

I don't know anyone who has gone through this. 

Have you asked in other groups? 





.Angelica.
by on Jan. 19, 2014 at 12:55 AM

:( I've never been through this. hope you find some support.

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