Hey, I'm Tracey married to a wonderful man by the name of Brian and we have a precious 6 year old daughter named Shelby Lynn. We reside in Waynesboro,GA. My days are filled with joyous moments spent with Shelby. My husband and little girl are my life. I am a devoted Christian, wife, mother,volunteer for the Center for New Beginnings- www.nbeginnings.org (our local non-profit Christian Center for the Special Needs) and also involved  in our Church's BiblePlaySchool Program. At the Center, I serve as the Parent Support Coordinator providing resourceful information to other parents as well as hosting bi-monthly Parent Support Group meetings where we as parents can come together to get away from life's everyday struggles as being parents of special needs children for just a brief moment.

Little More about Me........

 My daughter and I both have a trach. We both have a rare syndrome, Osteopathia Striata with Cranial Scelrosis. This syndrome has several different names and variations. Abnormalities include: severe obstructive sleep apnea (which causes us to be tracheostomy dependent), very small nasal cavity/passages, hearing impairment, cleft palate, GI issues, very large bones (facial structure issues), dental issues, developmentally delayed,etc. Life span is normal there is no cure, and only a handful of people worldwide with it. I have had my trach for about 25 yrs and have done well if I have to say so myself. Shelby received her trach in 2006, she continues to thrive each day. I look forward to meeting others with similar backgrounds and hope to shed a little bit of hope and inspiration to others. I have posted our story in journal section  to share a little hope,inspiration and know that God is Good All the Time. Please visit Shelby's page for current family updates: www.carepages.com page id: babyshelby