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by ValRiggs posted at 4:15 PM on Aug. 9 , 2009
Well. My name is Valerie and I am 24 years old. I am from a small town by the river in Ohio..I am a stay at home mom of 2 of the most amazing children on Earth! My daughter, Kayleigh, is 5. In August of 2009 we found out she had stage IV high risk Neuroblastoma (it's a childhood cancer). She has been through so much over the past year 1/2 and she is the strongest 'woman' I know at only 4 years of age. She endured a massive surgery to remove the tumor and her left adrenal gland and to place her ports in her chest for her chemo. She underwent 6 rounds of chemotherapy... A stem cell harvest.. a stem cell rescue/bone marrow transplant. 12 days of high dose radiation to the original tumor site.. then 6 months of addition treatments that are part of a study showing great results. She has been in remission since February of 2010 and will have regular scans to hopefully prove she is STILL in remission! Please keep her in your prayers! My little boy, Aiden, was born December 1, 2009, and is 16 months old. Where does the time go? He was born with a couple deformities.. His pinky and the finger beside it on his left hand were fused together.. When he was just 6 months old he underwent surgery to seperate them and it was a huge success! If it wasn't for the scars you would never know they were once stuck together..He also has one tiny ear, and one big ear.. Plus an unevenly shaped head and low muscle tone. He has been diagnosed as being developmentally challenged and might possible have some degree of mental retardation. He is currently being tested for creatine deficiency syndromes and fragile X syndrome.. and he was also recently diagnosed with epilepsy. Everyone say's I worry to much.. But I can't help it. These are my babies and I would do anything in the world for them to make sure they were ok.
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