Hi, I have just found out that Ilana actually has 22q11 distal deletion. I don't know much about it yet but i have been told she is one of only 15 recorded cases in the world. I was just wondering have u heard of this and would u happen to know anyone else who has? x

I joined that site you sent to me.

Thanks for your post. I will go and check out that page.

Hi there, i wrote a post a few weeks ago about a memorial video for our angel babies, the video is finished here is the link http://www.youtube.com/watch?v=S_SRUu5bASM&feature=channel_page
please let me know if theres anything u would like changed :)

Hello while for a while I was spreading the word about digeorge awareness but I have so much on my plate right now that when I find the time to just be I take moments and relax. I have digeorge syndrome so do my half brothers 2 of them and my sister my father has digeorge syndrome also and when I gave birth to my daughter who is now two years old she has digeorge syndrome. we all have 22q deletion with hypocalciuma