I've basically been a stay-at-home mommy for the past 10 years loving my three beautiful miracles.  My middle son, Zach, was diagnosed in 2004 with a rare genetic disorder called FG Syndrome.  He has severe tantrums, autistic-like behaviours, sensory integration, ADHD, and developmental delays.  I did work part time on and off for different companies, but my family was always my priority.  My husband was diagnosed with a terminal brain disease called Frontotemporal Dementia in September, 2005 (alot like Alzheimer's).  Since then, I have also become a caregiver as he has progressed rapidly with brain and memory deterioration, and has also developed Fibromyalgia...so he has now become very weak and riddled with chronic pain.  I also just went back to work to start a "career" OUTSIDE the home (hehe) ... I have decided to go back to school this summer to get my certificate as a CNA to give me options for my future (I currently work in a hospital in medical records) as I will have to become the breadwinner now.  It's always one day at a time here...  

And now for an update... I don't get to access this as much as I'd like to..but please feel free to leave me a message anytime.  My son Josh, was recently diagnosed w/ADHD and I think I also see soft signs of FG Syndrome in him as well as with Zach.  Zach's is so much more involved with autistic behaviours, developmental delays, and sensory integration.... yet both suffer their own ways.  We also found out more about my husband's prognosis at this time.  Much more deterioration with more perfusion in his brain (lack of blood flow), AND NOW THE DOCTORS ARE ALSO SEEING DEFICITS IN HIS BASAL GANGLIA...what does this mean???  Possible Parkinson's ON TOP of the dementia.  So we're back to living in doctor's offices.  But as Josh groban puts it best..."there's so much to be thankful for"...still...