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5/31

IF I HAD GILLS,I THINK I'D SWIM AWAY.INSTEAD I AM STRESSED TO THE GILLS.

KADE SCARED ME SENSELESS TODAY.YESTERDAY HE HAD A FEW EXCEMA LIKE SPOTS.TODAY HE BEGAN WITH HIVES AND ENDED UP IN THE E.R. THEY GOT SO BAD AS WE WERE ARRIVING HIS EYES WERE SWOLLEN ALMOST CLOSED,AND TONGUE THICK.HE HAS NOT BEEN AROUND FRESHLY MOWED GRASS,AS LAST TIME.

THEY FINALLY STABILIZED HIM 4 HRS LATER,LOTS OF PREDNISONE&BENADRYL.IF HE HAD NOT BEEN BETTER WITH A PULSE OX(SATURATED OX YGEN LEVEL)THEY WOULD HAVE KEPT HIM!OMG!NOW I AM NERVOUS TO SLEEP.WE ARE TO SEE HIS FAM DR ASAP TOMORROW AND THEN A SPECIALIST AT CHILDRENS OR STRONG-OUR TWO AREA HOSP W/ SPECIALTY UNITS.AND OUR INS SUCKS.OY.

I HAVE NOT FED ANYTHING NEW ,CHANGED SOAP ETC.PLEASE KEEP HIM/US IN YOUR GOOD THOUGHTS.

UPDATE   6/1,9:42 P.M.

JUST GOT HIM TO SLEEP AFTER ANOTHER ROUND AT THE E.R. ALTHOUGH HE HAD NO TROUBLE BREATHING,AS EARLIER,HIS EYES TURNED PURPLE AGAIN&SWELLED CLOSED AND HIVES GOT ANGRIER-DESPITE THE MEDS.TOOK HIS LIL INCONSOLABLE SELF BACK.NOW HE HAS PRESCRIPTION ZYRTEC,TOO.THEY WANTED US TO GO TO STRONG HOSP TONITE,BUT WHEN THEY CALLED THERE IS A 6 TO 8HR WAIT.OUR HOSP(BITTY COMMUNITY) DOES NOT HAVE FURTHER RESOURCES OR TRAINING FOR HIM.

SO WE DECIDED INSTEAD OF SUBJECTING HIM TO THE LENGTHLY WAIT -WHERE HE'D BE SEN IN THE WEE HRS ANYWAY -TO SET OUT EARLY IN THE A.M.---JUST AS PLANNED BEFORE,ONLY NOW WE HAVE MORE MEDS AND ANOTHER BILL.AND A WEE BIT MORE PEACE OF MIND I GUESS.

I TOOK INVENTORY OF ALL HIS REGULAR FOODS,SINCE THERE HAS BEEN NO CHANGE,AND ONLY FOUND A COMMON DENOMINATOR OF RED DYE.SO THAT'S THE FIRST THING I'LL SHARE WITH THE DR. HAS ANYONE EVER HEARD OF THAT?

THANK YOU FOR YOUR GOOD THOUGHTS/POSITIVE ENERGY/PRAYERS.SEND 'EM MY WAY TOO,MY TIRED BUTT HAS A VIGILANT NITE AHEAD.LOVE TO YOU!

Update 6/2,12:22

Thank you,ladies,for all of your support&healing thoughts!

Set out with Kade !AGAIN! early,and here's a summary:

They do not want an all out allergy testing done today,saying it's too invasive.In tiredness,I did not ask if that's due to his poor condition or age.We have a lengthy list of allergens-a few  without confirmation,as of yet:

*Grass*Amoxicillan*Azithromycin*Cephalexin*Cephlosporins*Red dye((and I have been pumping him with the benedryl they reccommended!!))*yellow dye*ultra violet rays from the sun are a possibility.One I do NOT want to consider.

So,we have a stronger steroid.This poor babe is on that in addition to Prednisone((which makes me very hesitant due to the possibility of stunting his growth)),Zyrtec,Singular,prescription hydrocortisone,and now a nebulizer with albuterol.I hate the thought of all this so bad!I also feel foolish-I didn't confirm until today that his eyes swelling shut are a dead on indicator for airway constriction also!Obviously,I knew he had both symptoms but did not imagine they were so closely intertwined.

You know what?Despite this all he is mostly his sweet,tender,busy self.I am really lucky there.If he slept,he'd be perfect and we all know that's not allowed(atleast among men)-LOL,LOL.

As it stands I am to call 911 immediately if the meds&nebulizer fail to work today and his symptoms worsen.Then they will give him Epinepherine and admittance.I really don't want to go in that direction!Otherwise,back Thursday a.m. for a re-eval and if no improvement admittance.And at 18 months today(YAY&YIKES!)he will be due for shots at that time also..........

 

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Comments:

singe...
Jun. 1, 2008 at 6:16 PM Wow I can so empathize with you on this one.. Read my journal post on my son's story. I will absolutely keep you in prayers hun..

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IALUC...
Jun. 1, 2008 at 6:26 PM YIKES!! Hopefully it's something simple and he can just be put on something easy.  Sending you lots of love and strength! 
Love ya!
Mandi

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mshaiku
Jun. 1, 2008 at 6:54 PM Oh Tanya. You must be so scared. I have no ideas for you. Good luck with the doctor tomorrow, and I hope they can figure out what's wrong. (((((((((((((((((((((((((BIG BIG HUGS))))))))))))))))))))))))))

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TINKF...
Jun. 1, 2008 at 8:44 PM

Yikes!  Kids and the ER... no fun!  Been there, done that, bought the teeshirt and have no desire to go back!

If your Insurance is crappy, try talking to his DR.... our endo (Nick is type 1 diabetic) gave us stuff until we could afford to get back on the copays.

Love you.  Take a bath... don't swim away!  We need you! LOL!!

Oh~ Just thought of this... ty using the Law Of Attraction (The Secret) for health.  Think healthy thoughts for him...

I will too!!

Love you... again.  Still.  Whichever...

Tink

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Ttime
Jun. 1, 2008 at 8:56 PM Whoa!!!  No fun at all!!  I will say prayers for the little man, for sure!!  Hang tight, my friend...you are certainly being tested, aren't you?  Better days ahead!!!  Promise!!  I hope you get some rest! 

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JHanc968
Jun. 1, 2008 at 10:44 PM Keeping Kade & you in my prayers.  Much love & healing thoughts!!

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sonja007
Jun. 2, 2008 at 8:37 AM Sending prayers to Kade and you...So sorry to hear about what happened.  I just got back on line.  Sending  love to you!!!

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bjaco...
Jun. 2, 2008 at 9:07 AM

You and Kade are in my thoughts and prayers.  Kids and allergies are rough.  I have 2 allergic, asthmatics and have been to the ER many times.  My oldest was bit by a spider when she was about 3, and had the hives from head to toe.  The doctor found the bite mark when examining her.

I hope they find the cause and things are better for you today.

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Shutt...
Jun. 2, 2008 at 10:04 AM

Both of you are in my prayers.

You need a break...

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Ttime
Jun. 2, 2008 at 1:03 PM

A break indeed!!  Thanks for taking the time to give us an update - I know you must sitting on pins & needles, draining more energy from an already tired mom...I pray you'll find the healthiest solutions for your little guy, and that you'll all get some much needed rest!!  xo

 

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