This is Cody John on the day he was born, weighing 2 pounds 3 oz. One week after he was born Cody suffered a massive brain bleed, which resulted in scar tissue on his brain, which resulted in Cerebral Palsy 

 

 

When Cody was first born they told us that he would likely never walk, talk, eat on his own, and may never breath on his own. They asked me to take him off the vent. It was then that I realized I would spend the rest of my life fighting for him.  The first official CDC funded prevalence study in 2008 shows that 1 in 278 children have Cerebral Palsy, which is alarming since they had previously projected only 1 in 666, that's quite a difference. CP prevalence is higher then childhood cancer, cysitc fibrosis, hearing and vision loss, spina bifida, but yet there is currently NO comparable fedral funding for research.  

 This is Cody today, he and I fight for the 800,000 people living with CP everyday. I write letters to senators and representatives, I support the mothers around me going through the same things I am, I write posts, and support people on this site....it's what I love to do, it is what I think I was born to do. Cody walks in charity walks to put a face to CP.  But ladies we can't do it alone, we need some help, and we am asking for your help....there is currently a grassroots, parent lead organization out there fighting for us all, Reaching for the Stars is a foundation that was founded in 2004 by 2 moms that were just frustrated that no one would listen to our voices. But THEY can't do it alone either. Recently I recieved a resopnds to a letter I had sent to a Kentucky Senator, and in his letter he thanks me for my concern for "Cystic Fibrosis" and he lists lots of interesting facts about it, but my letter wasn't about Cystic Fibrosis, it was about Cerebral Palsy.  Friends of mine have also recieved letters with such mistakes. Which just tells me we need to make them listen harder. Currently RFTS has asked the government for $10 million dollars to support the CDC in doing an Epidemiological Study and National Surveillence, this is where we need to start to start understanding CP, and why it happens and how it happens. Please ladies write a letter, write an email to your local reps or senators, it only takes minutes, but can change a whole lifetime for children like Cody. Thank you...Please visit, www.reachingforthestars.org for a complete list of CP facts, or if you would like more information please feel free to contact me personally by sending me a PM. 

 

 

 

 

 

 

 

 

Add A Comment

Comments:

alexi...
Jun. 2, 2008 at 12:02 PM What a strong woman you are. You two make a very good team! You're little boy is a blessing!

Message Friend Invite

MOMMY...
Jun. 2, 2008 at 12:12 PM Cody is so aadorable !!! We will all stand with you and fight for our kids ,great post .

Message Friend Invite

cpmom610
Jun. 2, 2008 at 12:14 PM cody is so cute standing there all by himself i will stand and fight with you

Message Friend Invite

Holdt...
Jun. 2, 2008 at 5:23 PM I have to say I totally agree that you were definitely born to do this! I will do whatever I can to help.

Message Friend Invite

erfrye
Jun. 2, 2008 at 10:57 PM

You're such an inspiration!  I hope to accomplish 1/2 of what you have Michelle.  You keep fighting!  I'll keep trying to keep up...lol.

Message Friend Invite

Annie37
Jun. 22, 2008 at 5:08 AM I applaud you & Cody's bravery...I am SOOO new to all of this,but I truly would love to learn all I can,& want to do all I can to get the word out to increase awareness about cerebral palsy,while I am working to help my son, Gavin.

Message Friend Invite

Want to leave a comment and join the discussion?

Sign up for CafeMom!

Already a member? Click here to log in