My poor little angel, why can't he go for at least a month with no pain and problems?  It just isn't fair that he should have to struggle so hard to survive this life.

So he can't just get a cold or grow a couple, that is too easy.  He has to have horrible grand mal seizures with those simple acts.

So which one is it this time?  Getting sick, great , more hospitals...........or growing boy?  Which  is a great thing, but he should not have to suffer just to grow.

I know I am not the only mommy struggling with this, I don't pretend to be alone in this.  But I just break in half watching him seize time after time after time and don't know what is bringing them on until we are either in the hospital or outgrown everything in his closet overnight.

And no, unfortunatly I am not exaggerating that one.  When my angel has a growth spurt, it is not an inch over a month.  Last time he had a huge growth spurt, enough to cause grand mal seizures, he grew 9.5 inches and gained 21 pounds in a couple of months.  The growth area of his brain is affected by his brain he doesn't have normal growth spurts.

So we are about to be in the hospital or broke as a joke for having to refill his wardrobe.

Anyway, I just had to get this off my chest how unfair it is for him to have to fight through horrible life threatening seizures just to go through normal everyday occurances.

My heart breaks for you my Little Man.  Mommy loves you so much

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Jun. 3, 2008 at 7:06 AM

Awwwww buddy!!! Aunt Chelle's heart is breaking for you too. I love you to the moon and back and really hope it's just a growth spurt and not sickness!!

Mama~ Stay strong and know that I am here for you if you ever need me. I love you more than my luggage!

Prayers are definitely coming from the Gainey household for the Crawford compound!

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Jun. 3, 2008 at 8:33 AM i hope your son will be okay. my step mother went thru the grand mal seizures with every cold my step brother got. my prayers are with your family. 

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Jun. 3, 2008 at 9:50 AM I pray this is a growth spurt and JJ is not getting sick, having to buy him new clothes is 100 times better than having to put him in the hospital. My JJ does the same thing when he goes through one.... Hugs ans Kisses for everyone

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Jun. 3, 2008 at 9:51 AM ((HUgs))) Hopefully it's a result of him growing and not getting ill.

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Jun. 3, 2008 at 9:53 AM awww..i hope that its just growth spurts mama!!! (((jackjack))) hang in there little guy. remember..this is the little guy that surmounted all odds!!!! he can do anything and make it through anything with prayer and his mommy!!! I'll pray for you that he is just growing and god take it easy on him for a lil bit...give mama a chance to catch her breath!

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Jun. 3, 2008 at 11:54 PM Hugs!  You'll be in my thoughts! 

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Jun. 4, 2008 at 8:21 AM Your such a good mother to this little boy....stay strong...and I know how hard that is....just lean back on your family and your friends when it gets hard....we are here to help hold you up!  And we will pray that it's not sickness again....Hugs to you and JackJack!!!

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Jun. 4, 2008 at 10:35 AM Saying a prayer for JJ!

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