My Leila will be 3yrs. old in 2 wks, and I would just like to share some things about my precious daughter with you. I have been seeing alot of post on here about ds and it makes me thrilled to see that more and more information is being shared.

    Let me start off by saying that I'm a mother of 6 children and I love all of my precious children' and as all mothers I have had my ups as well as downs. At the age of 39, I had Leila. I was very sick during my pregnancy, and had extremely high blood pressure.  At 30 wks, I was informed that my blood pressure was too high and the baby hadn't grown any in 4 wks, so I  had to have an emergency c-section. I was so scared because the baby was just too small. Leila weighed 2 lbs. and was 13 inches long. The room was so quiet and nobody said a word. My husband came into my room after the delivery and told me she ws doing great, and that she was breathing on her own!!! I was so relieved, and then he said, they are going to test her for and I stopped him and said down syndrome. He was shocked because all through the pregnancy I knew. I didn't even have the test at 20 wks, because it didn't make any difference to me. I never will forget the first time I saw my child. She was so small and fragile, but it was so amazing to me that she didn't have to have any oxygen. I looked at her and the tears flowed down my face. I wasn't sad about the downs, I was sad for her future, and weather or not she would be excepted into society. Kids can be very cruel, and it just tears my heart into little pieces to think anyone would hurt her feelings.

        She stayed in the NICU for 5 wks, and then I got to bring her home. She was so small and I was so scared for her. I stayed awake for weeks. She learned to sit up at 13 months old. The doctor said she may never walk, but she did! At 29 months she took her first step, and I was so happy I cried.  She is now learning sign language and at every milestone we get very excited. She has taught me a lifelong lesson, and that is, never take anything for granted and cherish evey moment  you have with your children. Leila will have surgey on the day after her 3rd birthday to have her tonsils and adnoids removed. I'm scared for her, but I know God will take care of her. We are hoping she will be able to eat from a spoon after this surgey because she eats a liquid diet from a bottle. She is my blessing and she is my true soulmate.

     I wanted to share this for Leila and all the other children with down's. They are loving people and so humble, and I know that nobody on this earth loves me as much as my baby does, and my love for her is as deep as well. Every morning when she wakes up she has the most beautiful smile for me and she puts her little arms around my neck, and says " I uv ooh". To me, that is the most beautiful thing I hear everyday of my life. I'm so thankful to have a down syndrome child because I would have never learned to love as I do now. I thank God for entrusting me to take care of his own angel and I'm so glad He chose me for this very important job. I use to wonder what my purpose was in life, and now, I wonder no more. I see the world through different eyes and I am a better person for it.  To have a down syndrome child is to learn life's new lessons and to take everyday as if it were your last. My love to Leila, FOREVER..........

Tags: down syndrome

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