Luke had another episode two days ago that none of his nurses thought the docs were going to count.. they all thought he would be home tomorrow... thats what they have been telling us.  Turns out they were wrong. 

Instead of today being day 5 we are back to being on day 1.  We found out today he has 2 types of Apnea.  He has one type that is central... meaning that his brain isnt telling him to breathe and another that is obstructional.  they think that after he eats he is having acid reflux and that is causing his airway to become obstructed and he stops breathing because of it.  They put him on Prilosec and Zantac to help control the reflux and are hoping that will stop those spells.  He has been having alot of those spells but we have been told over and over again that they didnt count them because he was eating... well his nurse practioner DID count the last one. 

So providing things work out he will be home on Friday.  I was crushed when I got there today with his carseat and going home outfit all set up.  I thought they would do the carseat test and we would get to bring him home tomorrow.  the nurse practioner walked out and I lost it.  My poor husband was soo angry with the nurses and docs for not communicating and for making me cry! LOL.

I know hes where he should be for now but I was so crushed.  I was looking forward to finally having him home.

I am not getting my hopes up on this week either.  I cannot handle anymore of the hes coming home.. hes not stuff.  I will not get excited until hes in the truck and we are parked at our apartment and hes sleeping soundly on my chest AT HOME!!

Everyone can see this journal post.

Add A Comment