I am so nervous about my Lilly's appointment tomorrow.  She is going to see the neuro-psychologist.   So, she might have a full autism diagnosis or lose her provisional diagnosis.  And quite honestly I can not decide which I want!  Obviously no one wants their child to have an autism diagnosis and the thought makes me so anxious and a little queasy to even think about.  But if she needs the diagnosis and the doc feels she is autistic then she needs the services and I want that for her. 

And here is the hard part, she is up for re-evaluation for early intervention on Tuesday and her service coordinator told me she does not think she is gonna re-qualify.   Her speech is doing great and has come so far, which of course is wonderful!  But, I guess sensory issues alone can not qualify her for services.  So, she will lose therapy, and play groups, and all services if she does not qualify. And the Michigan testing device they use is subjective to the person doing the evaluation.  So, I feel she is already being pushed out cus her service coordinator is already saying she does not think she will qualify cus things seem biased to me already.  I am so afraid that she is gonna be left with no services and go backwards in her progress.  Her sensory and social issues are so extreme that she really needs therapy, but I am so frustrated that I feel like she is gonna have to get an autism diagnosis to get those services whether she really is autistic or not. 

I am just so frustrated, crying over it, and have not been sleeping well worrying about it!  I just want what is best for my sweet Lilly.  Please pray that what is meant to be will happen for her!  She is such a wonderful little girl but struggles so much daily with her sensory and social issues and it pains me to watch her with those obstacles!  I just want her to have all the therapy she can so that she is able to be more comfortable and live up to her full potential!  Thanks for listening and please keep my Lilly in your thoughts and prayers!

Kelly

Tags: autism

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