as you know I had the privlage of taking care of a child with Moubious syndrum . I got Emily when she was three. she was on machines and could not even sit up on her own . I cared for this child for five years in witch time she was able to get free of all machines walk and do normal things. She used sign language to comunicate . her dad a few years ago decided to try to care for her and moved her away . but about six months ago they came back to live at our home so Emily was a part of my life again . on the morning of 9-9-08 he went to go wake her up for school but she dident move. they pronced her dead at 8;30 am . we will miss her so much I know this is not the best letter i can wright i just needed to vent a little.