How I am??

[momma_2_3]

I haven't been on in awhile a peek here and there so I thought I'd update my friends on how I have been.. Well for the most part I am TERRIFIC... I FINALLY got my girl and she is precious so much different than my boys.  Funny how that works my boys all seemed so different and no with her I realize just how similar they were.. Kinley is 4 months old now and what a 4 months it has been.. She was born May 20th and July 1st I was diagnosed with Myasthenia Gravis an auto immune disease. Some of you know my history with the doctors and their reluctance to diagnosis me with MS..this was why.. They did a Tensylon test and I had a positive reaction according to my dr.. could only happen if I had Myasthenia so they put me on a medicine called Mestinon and for time it seemed to be working.

 On July 27th my youngest sister had her first baby a little girl they named Mackenzie.  I was there with her the entire time.  I went home sunday night to get Eion and the kids... almost said boys have hard time remembering to include Kinley..lol.. took my meds and went back.. We all visited for awhile and then we left to take my momma home.. I should back up a little and say I had been having some side effects from the med.. muscle twitches mostly around my mouth... a noted side effect nothing to worry about.. Sitting in Culvers parking lot waiting for our food I started to feel the twitches.  I turned to ask my momma if she saw them she of course said NO.. so I turned back to look in the mirror I not only felt them but I saw them so I turned again this time she saw them and them my eyes were blinking uncontrollably.. My body was turning against me.  Every muscle was fighting I couldn't swallow.. I didn't know what was going on we turned and went back to the hospital where I had 2 seizures and then was transported to UW .... To the Neuro ICU... I had a Cholinergic crisis.. I had a build of the meds in body a TOXIC level... I don't have Myasthenia.. So my body didn't need the Mestinon.. My heart rate was dangerously low I stayed in the hospital for 4 days.. I had an EMG( nerve conduction test ) and a single fiber these 2 tests indicated I DID NOT have Myasthenia..Guess What they still don't know what I have.. I had another MRI on the 12 of this month.. waiting to hear the results..

The day I came home from the hospital we were in a Car accident no one was hurt thank god... My van did not fair as well...

The boys stated school Dylan is in 3rd and Darik is in Kind.. getting used to having Kadence and Kinley home with no big boys.. I think Kadence likes it alone time with mom.. I am truly blessed... No matter what is going on with my health at least my kids are healthy and safe.. That is all I need.. although I would like to have an official diagnosis..any who.. I am great.. and my kids are terrific...

[4cutekiddos]

Sep. 20, 2008 at 8:43 AM

Wow Jen!  You sure have been through a lot!  Good to hear your keeping your spirits up.  You are a strong woman!  OMG, you have had a some very scary situations!  I am so glad that you are all okay from your accident.  Sorry about your van!  Happy to hear you came through alright with your mix up with the meds.

((((((((((((((HUGS))))))))))))))

♥ ya, miss ya!