I'm sad. And I'm tired. Sick and tired. And I'll tell you why.
I'm
tired of mothers thinking that children with delays are NORMAL, that
their behaviors are normal. And that parents are jumping too quickly to
get a diagnosis from their doctors. I'm tired of people thinking that
things like ASD, ADD, ODD, PDD, ADHD and all of the other acronyms out
there are just NORMAL children who act out in different ways. That all
we should "worry" about is making sure our children are "happy". Who
cares if you think your child is delayed as long as they are "happy"
right?! As long as they are "happy" they MUST be normal right?!? Is
that how you can tell if they really are delayed? By how HAPPY they
are?! Is there some sort of "Happiness Handbook" out there that I am
un-aware of? With Q and A like this for example "If your child doesn't
smile at you when you smile at them THEN they have something wrong with
them" What kind of IDIOT thinks that Special Needs children aren't
happy. And that HAPPY children can't possibly have special needs?
Sounds to me like you could use a nice piece of duct tape over that pie
hole of yours so you can't spread your ignorance to other people.
Shame on you.
Let me tell you a story about a "happy child".
Once
upon a time, there was a HAPPY baby. He hardly ever cried. He could go
anywhere, even as an infant in his little carrier, and he'd never make
a peep. He'd flap his little hands, and laugh and giggle. He'd move his
fingers in front of his eyes and he'd laugh and laugh. He would stare
off into space and smile and laugh, we used to say he was playing with
the angels. But he wouldn't look at your face. Nope. Never. When he
started walking and babbling he would stand in a corner with any stick
shaped toy and babble to it (we called that "preaching") Yes, he was
quite HAPPY. He would rock back and forth, HAPPILY giggling to himself.
He would HAPPILY line up all of his toys. He would laugh hysterically
when he would make this wheezing sound and an adult would fly to him
and pick him up to make sure he was breathing. Yes he found that game
to be QUITE enjoyable!
He was even HAPPY when he would be
watching blues clues all the way up until they would sing the mailbox
song.. Then, he was not so happy.
And what did he do when he was not happy?
He would SLAM his head into the walls. Kick people, scream, hit people and make them NOT HAPPY with him.
He
was HAPPY as his mommy asked the pediatrician if that meant there was
something wrong. And he was HAPPY still when she said "Don't worry, he
won't do any damage to himself, babies can't hit their heads on things
hard enough to do any REAL damage. He's just tantruming. He'll grow out
of it. Just ignore him when he does it.
So the HAPPY baby's
mommy tried to ignore it when he would hit his head on things. Then the
HAPPY baby decided he would up the ante, He HAPPILY learned to throw
himself back into the walls with such force he would break through the
sheet-rock leaving GIANT holes where his head went through. Or slam his
forehead into doorjambs so hard he needed stitches. He would take hard
plastic toys and beat himself in the face with them. Still the
pediatrician was convinced there was NOTHING wrong with him. "But he
won't even look at me" pleaded the happy baby's mommy. "Not to worry"
said the nice doctor, "Just give him time."
"But he's not reaching
his milestones like other babies, he should have some words, shouldn't
he? Like 'Mommy' or 'Milk'. All he ever says is his alphabet, colors
and shapes, he's barely a year old, isn't that a little bit odd?"
questioned the happy baby's mommy. "No, no. You should be HAPPY to have
such a SMART BABY" said the ignorant doctor.
As the HAPPY baby
grew into a HAPPY TODDLER he learned EVEN MORE new tricks. Like wiping
his poop all over walls and toys and himself. It was the most FUN game
EVER! The HAPPY toddler's mommy was NOT so HAPPY with this new game.
Many nights she would lie awake thinking about her HAPPY toddler, and
she would cry and cry.
But still, nobody had answers. He was
just a HAPPY toddler, that acted differently than other children. A
HAPPY toddler, that would not speak. A HAPPY toddler that wouldn't even
notice if there were other people in the room with him.
The
HAPPY toddler grew and grew, and learned EVEN MORE tricks! He learned
to scream and scream at the top of his lungs repetitively. He liked the
way it stimulated his brain! It felt good to do the same things over
and over and be as loud as he could be! OH how he enjoyed repeating his
loud sounds!
Finally one day someone mentioned to the HAPPY toddlers mommy that he might have something called Autism.
The
HAPPY toddlers mommy protested "But the DOCTOR says he's just fine.
He's just taking his time doing things. And there's NOTHING WRONG with
him."
But the HAPPY toddlers mommy wasn't sure she believed that anymore.
She
took the HAPPY toddler to a panel of specialists so that they could
test the HAPPY toddler and find out why he did such silly things.
As
it turned out the HAPPY toddler had SEVERE delays, in motor skills,
communication, social development. In fact he had SO MANY delays they
wanted him to start at a special school RIGHT AWAY, doing different
therapies. The HAPPY toddler needed A LOT of help!
He wouldn't
touch carpet, or grass, or asphalt, or concrete, or wood, or tan bark,
or gravel, or sand. He HATED wearing clothes. He wouldn't eat ANYTHING
but carbohydrates. He could not even TOUCH meat or vegetables! He
couldn't pick up a pencil or a crayon. He wouldn't play with his toy
cars unless he was flipping them upside down to move and wiggle the
wheels.
His mommy had never heard her name (or anyone else's for that matter) being said by the HAPPY toddler.
The
HAPPY toddler started school and therapies when he was just shy of 3
years old. One day when the HAPPY toddler was almost 4 years old his
mommy heard the most beautiful sound in the entire world! She was
getting ready to go to work and the HAPPY toddler ran up to her, hugged
her leg and said "I wub you mommy, bye bye!" The mommy's heart skipped
a beat. She looked down, bewildered by what she had just heard. She
collapsed to her knees hugging the HAPPY toddler, sobbing with joy.
This was the first time she had EVER heard her HAPPY baby say he loved
her. Or even a whole sentence, for that matter! The HAPPY toddler's
mommy called in sick to work that night and spent the whole night
cuddling with her HAPPY toddler.
As HAPPY as the toddler was he
was still delayed. He grew and grew. He was still wearing diapers all
the time even until well after his 5th birthday. He still didn't like
certain sounds and would cover his eyes and ears and cry when he heard
them. He didn't like bright lights of stores. He had to be prompted
often to use what little words he had. He was a very HAPPY little boy...
I'm
going to stop here. My son has ALWAYS been HAPPY. I never had to
question that. But that does NOT mean that he was "NORMAL" in any sense
of the word. And in case there's any confusion.. NEURO-TYPICAL (meaning
no obvious delays) and HAPPY are NOT SYNONYMOUS!!!
My kid and
others like him are not "bad". And they are not the way they are
because of "A lack of discipline" they don't "Just need a good
spanking" they process information differently.
And the YOUNGER they are when their delays are NOTICED and DIAGNOSED....
THE HAPPIER THEY WILL BE!!!
Tags: autism, developmental delays, judgements, parenting, doctors, baby, toddler, pediatrician, diagnosis, tantrums, meltdowns, potty training, home repairs, happy, mommy, spanking, normal, add, adhd, pdd
WOW!!! Thank you for standing up for Mom's like me. Who get bashed because we medicate our children, because we want to make other Mom's aware that these things do exist. Its not something we did or didn't do that made our children this way. Its just the way it is....
my mother had me in 1961 and my mother didn't hear of the word autism. I didn't know what the word meant until i had my 2 girls tested by they're school psychologist . the first awareness of this disorder was from my younger daughters 4th grade teacher,she suspected my daughter was behaving not in a normal way as the regular kids wer behaving.my 2 girls are diagnosed mild to moderate autism. i wish i could of known this earlier. i didn't know what the symptoms were of atuism.. when my girls misbehaved,my MIL would comment on how if this was her andin her days, that she would do this and that. i never spanked my girls. they got time outs and priviliages taken away from them though
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wonderful post. I'm sorry there was not someone who could have helped you earlier, and for your son. You are his best advocate, always trust your instincts and never let anyone tell YOU that you are wrong. You know him better than you think.
betsystipo Oct. 4, 2008 at 8:20 PM