My little girl Gina, full of life, smiles and love. So little and innocent but consumed by this disorder known as autism. Family and strangers do not understand when your little one lines up items for no apparent reason. when you cant take her out to a store because of the noise and confusion. When she needs to follow a routine and schedule everyday,so that she is happy and  not lost. When she does not have the language of a three year old  and of course she still is in diapers and loves her bottle when she gets scared or confused. When she has a total meltdown because of a change of routine in a car or at the park. When she doesn't want to go into grandmas house because there are to many people. When she covers ears or closes her eyes because of noise.  then the questions start and never end. why do you think this happened? Was it the vaccines? or maybe the pre-term medication you were on terbutaline? It is a never ending story. People need to open their hearts and listen. Why do they judge by what she does abnormally and why cant they look at what she has accomplished since the diagnosis. No one is to blame, its not moms fault or dads fault.  you cant take the autism and throw it away. My Gina is who she is, I cant take the autism our of her, but i can do my best to control it and let Gina live a normal life that was given to her on birthday...My angel may be different because of autism, but, she still is a beautiful little person full of life and hope.

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Comments:

redta...
Nov. 15, 2008 at 4:23 PM

That's beautiful, I know how you feel.  Living with autism in an everyday struggle that no-one could understand until they are personally affected by it.  I am dreading the holidays.  I know they will  be a disaster because of all the hustle and confusion.  We as parents can only do what we can do.  I want to be able to look myself in the mirror when Tanner grows up and honetly be able to tell myself that I did all I could do no matter how he turns out.  I do not want to have any regrets.   

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mom4jads
Nov. 15, 2008 at 5:18 PM

Where you on terbutaline to stop early labor? Because I was and I never knew there was a link between that and autism. I'm so sorry people can not be more understanding.

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nycalgal
Nov. 15, 2008 at 7:03 PM

You're a wonderful Mom Susan.  Let Gina be who she is going to be.  My Daniel turned out to find acting as his calling.  He is so good at it too.  Nurture Gina like you are.  Find things she likes.  Set up activities for her.  Introduce her to group activities.  There is so much out there for our special children.  Mine found his way, with your help Gina will grow up and find her way too.

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Rache...
Nov. 18, 2008 at 7:03 PM

I have read all of your journals, and all I can say is YOU are an awesome MOM !!!

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ryche...
Nov. 22, 2008 at 11:56 PM

Just want to say........You're an AWESOME mama. Keep doing what you do and little Gina will get there. And I agree, our angels are......just that.

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BooBe...
Nov. 24, 2008 at 7:58 AM

No one can say that any better than a loving mom. Don't let the ignorant asses in the world get you down. They aren't  worth the hassle. You are doing a great job giving your baby as normal a life that is possible. No she isn't exactly like every other child...... so what. God made her perfect the way she is. I wish you every good thought and prayer to not only to keep doing your best with Gina, but to also ignore those who don't or won't understand what you and the family deal with on a daily basis.

bow down

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kayme66
Dec. 2, 2008 at 1:55 PM

How is Gina doing?

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CELES...
Dec. 2, 2008 at 2:05 PM

Beautiful and I know exactly how you feel. I get asked everyday what I think I did wrong to "give" my son autism. He is who is he is. He is not autism......that is just a part of what makes him who he is. Thank you for this journal.

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