Please pray for Lily

[lilysmom1012]

Lily has now ppassed 24 hours of cycling leg and feet pain from dystonia.Anyone out there who knows anything about leg dystonia from mitochondria disease/metabolic disorder please message me and let me know.

Lily is in alot of pain every few minutes she will fall or crawl or cry out in pain grabbing her feet, her legs, and all I can do is massage her tylenyol, motrin cannot fix this.Tommorrow we go to Ft.Worth for a EEG then to hopefull get the new prescription for dystonia.

This began in July and has now gotten worse over thhe past 2 weeks.

Now its been going since last night.

I am so scared and so worried.

Please pray for her

www.carepage.com

screen name booboobunny

[shelly06]

Nov. 17, 2008 at 7:47 PM

AW Sweetie i have tears for the lil angel and you have ,my prayers and hugs sending them fast  hun im here i you need to vent  i will be praying for you both .

[Steph08]

Nov. 17, 2008 at 8:15 PM

Heavenly Father, please touch Lily. Bring peace and relaxation to her little body. Bless this family with Your strength and peace. Bring them rest tonight. Hold them in Your mighty hands, Your name I pray, Amen.

[MOMMYTO5CUTIES]

Nov. 17, 2008 at 8:51 PM

Aww I am so sorry that has to be awful ,poor baby .