lightsoflove's Journal

Come and meet Auriana Faith- 99% God's Child
Dec 19, 2008 at 11:18 AM
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- lightsoflove
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I have two daughter who I love very much.

Kylee is our oldest, the smart, loving, mommy's little helper...the big sister. Auriana Faith is our youngest, our little miracle.

The only way I know to tell her story is from the beginning, so here it is. I was told about halfway through my pregnancy that Auriana would be born with a heart defect called AV Canal defect. Basically that she would have several holes in the center of her heart.

At a later ultrasound we were taken into a little room and told that there were several ultrasound markers for a chromosomal abnormality. The doctors suspected either trisomy 13, 18, or 21. They recommended I have an amnio done so that if that was the case I could choose whether I wanted to continue with the pregnancy or not.... CHOOSE....

I didn't think there was a choice in the matter! She was already my child and she was already loved! What we CHOSE was to have faith!! We chose not to have any further testing other than regular fetal echos to watch her heart.

I was hospitalized at 32 weeks for pre-eclampsia, high blood pressure, and umbilical cord absent flow. At 35 weeks, an ultrasound showed that Auriana had not grown in over 3 weeks. The doctors came in and told me that they believed she had one of the worse cases of trisomy (13 or 18).

They decided to induce me immediately. I was told before going into the delivery room that they only suspected a 1 % chance that she would live through delivery and they advised me not to have a c-section.

I prayed and prayed and prayed that God would let my baby live!!When her heart rate fell during induction, I demanded they do whatever it took to get her out immediately.... c-section it was. She was out in only a few minutes.

She kicked the doctors hand on her way out, screamed like a little kitten, and proved all those doctors wrong!!

She was diagnosed with AV Canal Defect and Trisomy 21... DOWN SYNDROME. When I was told her diagnosis I said "Thank you God!!"

She was 3 pounds 10 ounces when she was born, today she is 2 and a half months old and weighs 7 pounds 10 ounces. She spent 15 days in NICU only for monitoring and weight gain, she never needed oxygen.

She does still have to have open heart surgery to repair her heart defects, but we know she is strong and will recover well! We know she was given to us for a reason!

She has been a great blessing to our family!!

More of God at work...

Today... She is 8 pounds 10 ounces... exactly 5 pounds more than the day she was born and she's not even quite 3 months yet!! Also, her Dr. said he is very pleased with how well she is doing! The Coreg seems to be helping a lot and buying time until she needs surgery. He also said it appears that part of her VSD has gotten a lot smaller and part of it seems to be completely closed!! The ASD looks the same. He said that as long as she keeps staying as stable as she is surgery can wait a little while!!

The bigger she can get before surgery the better! He also gave us the green light for her to start with some speech therapy to try to get her to eat more by mouth (she has some sensory issues and won't swallow the formula). Hopefully she keeps gaining weight good, keeps breathing good, her heart keeps working without tiring, and we can get her on some bottle feeds.

I'm just so glad the Dr. thinks she's doing so well and that he feels that she has a little while longer before needing surgery! God is good!!

Written by her mom Mom2kyky

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Dec. 19, 2008 at 11:31 AM

That's a beautiful and heart warming story. This type of story is the kind that keep me living with hope and faith.

chelsie_lyn

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Dec. 19, 2008 at 11:32 AM

that is amazing! God bless your family and that precious girl! she is beautiful and i hope everything turns out great for your family and her! Merry christmas!