A very Rough couple of Days and not looking up

[pockets1968]

Mandi has not been doing well the past couple of days and I have been busy dealing with everything that is why I have not been on here to post anything. Also I was down 2 days sick so that did not help either.

I went back in to see Mandi yesterday afternoon as I finally felt good enough to go back over to see her as I did not want to give her anything at all as she has too many fevers and infections.

On returning yesterday I had found out the the night before she had pulled out her breathing tube and had to be reintubated as she can not tollerate being without the breathing tube. Her lungs have a yeast or fungel infection in them so they are clearing slowly but very slowly as I was told today that her lungs look alittle better.

Today they came in to talk to me about putting a VAD (ventriculanter assist device) as they think that her heart is not getting better. To get on the pump she would have to get rid of her fever and get her white blood cell count  down to acceptable levels before they would put a pump in. The pump would work for her heart until she could lose enough weight to get on the transplant list.  And I know all this sounds very matter of fact but at the moment I am just on auto pilot as I am still trying to process everything.

They have had Mandi very far under on meds since she pulled her tube out so I have not been able to show her her gifts but I will keep them with me so if she is awake I can show her. Her sister and I have been reading her her cards when she is awake but we have only had one day like that in about 10 days so they are few and far between but I am keeping my fingers crossed.

Well that is all I have to tell everyone for now but will update more tomorrow when I know more as they are still hunting for another infection so we will see.

Thanks for all the letters, cards, notes and concern.

Kim

 

[Lydiaann213]

Dec. 30, 2008 at 1:00 AM

My heart really goes out to you...youve had a tough time dealing with the babies death and your daughter being so ill...Im going to pray for you both....please keep us posted....and Thanks for doing that especially since you are having such a tough time....God Bless...Lydia

[GodBless_MyKids]

Dec. 30, 2008 at 4:57 AM

Thank you for keeping us updated. I know how hard that might be for you right now. I will be praying for Mandi's lungs to be healed, fever to go away, white blood cell counts to go down and for her to get on the heart transplant list ASAP! Blessings~ and big *HUGS*

[farmerswifekel]

Dec. 30, 2008 at 11:01 AM

Thank you for the updates. I check every day!! God bless you all!!!

[dia4]

Dec. 31, 2008 at 1:00 AM

Thanks for keeping us updated. I know this must be hard on you and you are exhausted. To take the time to let people you have never met informed is really kind of you. I am keeping you both in my prayers.

[mommy2cristian]

Jan. 1, 2009 at 2:04 AM

I'm really sorry to hear that Mandi's not doing better.  She's in my thoughts.  I really hope things turn around.