Parker Update - Dec 2008 / Jan 2009 - Journals

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Parker Update - Dec 2008 / Jan 2009
Jan 6, 2009 at 1:26 PM
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- NewTurtleMom
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UPDATE - January 6, 2009 - It has been a crazy few months. Parker had an appointment with the Pediatric Ophthalmologist mid December. He has down-graded her Optic Nerve Hypoplasia to mild which is wonderful news. Technically, the optic nerve is not supposed to improve, but his comments were a lot more positive than they were when we were in the NICU. I have to think that the cord blood infusion has helped her vision. There are studies in China with a similar disorder that have showed promise. The US doctors aren't quite on board yet, but maybe they will get with the program soon. In any case, Parker will be visually impaired, but the extent to which may be better than we thought. He said her vision would probably fall somewhere between 20/100 and 20/200 which seems to be a great variance. You have to be 20/80 to drive, and I wish they had glasses to show me what 20/100 looks like. Maybe they exist? I'll have to ask.

Parker is gaining head control and doesn't wobble nearly as much. She started to laugh two days ago. What a wonderful sound!!!! So far she is keeping up with her corrected age (due date age - Oct 15th) development. Only God knows what the future holds but everything is going well so far.

On a very sad note, my Grandmother passed away yesterday. She had been hospitalized 3 weeks ago and it was apparent she was not going to be able to go home pretty early on. Her spirit was so vivacious and it will live on with Parker. It was very difficult to watch her deteriorate recently as I always thought she was invincible. We did have several special moments just days ago and I will cherish every moment forever. She was very spunky and had a peaceful end. There will be a void in our lives, but at least Parker has the best guardian angel ever!

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