Ok... here's my two cents.
First... I thank god for Jenny's books and I don't care how many of you are gonna bash me for saying that. If not for her books I would still be wondering and struggling and my son would still be suffering. Thanks to her books I got the nerve to get a second opinion and move on to a supportive, open-minded Ped who encouraged me to start speech/ot immediately. Thanks to her example, I restricted James' diet (not gfcf - only cf ) and started him on vitamins and pro-biotics. Within a week of starting the pro-biotics... James started mimicing, using words spontaniously(3 weeks), and put two words together(2 weeks). Within 6 weeks his meltdowns were gone and he started being social again. Eye contact, hugs, kisses, you name it. He even likes to hear me sing now! Before he would cry when ever anyone sang to him.
My son does NOT have severe food/environmental allergies. He's been tested. He had a couple of minor ones (cow's milk, beef, pecans) but the milk allergy cleared after a month on the pro-biotic and three months of raw goat's milk. He's still delayed in speech, but otherwise, he's a normal happy little boy now. HE IS RECOVERING.
Second... why are so many of you trying to DX her son? Sure he has siezures, food/environmental allergies, and a compromised immune system. So what? He's still an autistic child. I say that because he was diagnosed not once but twice (at least) with autism by Ped Neurologists and Dev. Pediatricians. So for you to sit at your computer and make an "armchair diagnosis" is just rediculous.
Third... about the interview. I'm pretty sure that NONE of you have ever had to deal with print media because if you had... you would know that published interviews very rarely resemble the original source material that they are derived from. Not only are celebrities misquoted, they are constantly quoted out of context. You ladies are getting all bent because "she said this and that"... She probably didn't and if she did... it probably was in a completely different context than the one in which it was published.
Did any of you notice that this "interview" consisted of a few very loosely related short quotes joined by the author's own take on the situation(s)?
And last.... Those of you who keep saying that JM claims that her son was CURED of autism... not true. She makes it very clear in her books and interviews that her son is not cured, but only in recovery. The only folks that claim she "cured" her son are reporters.
She's out there doing everything in her power to help autistic kids... to raise awareness... to show people that there IS hope. She's making an effort and putting herself out there to help autistic children. If she's not doing it the way that you think she should... get out there and do it yourself. Don't just sit here and complain and moan about what she's doing wrong. At least SHE'S doing something to raise awareness and find a cause/cure... what are you doing?
End of rant.
Comments:
I'm glad to hear that James is doing better. Sounds like you've been busy since the last time I saw you and he was supposed to be tested. I haven't read her books so I don't know which type of autism her son has so I can't make any kind of comment about her. I've lived with it for 15 years and it's hard to change things that a child that old is used to. Though I have thought about trying the change in diet to see if it would help. We found out a couple of weeks ago that Nathan is delayed in his physical growth as well as everything else. The doctor wants us to think about having him tested and possibly put him on steroids to make him go through puberty, which at 15 he should be almost done with. The up side would be he might get taller and look more like everyone at school. The down side is that the steroids will make him aggressive more than he already is and we could find out there is something else wrong with him. Not really sure how to decide between the safety of his little brother and him possibly being more like everyone else. I hope things continue to get better with James.
I'm hugging this post!!!! We're doing the same diets and supplements with our daughter and she is doing AMAZING. I seriously just laugh at people too closed minded too see whats happening. I APPLAUD YOU MAMA!! I volunteer for Generation Rescue (Jenny's site) as a Recue Angel and I LOVE it.
I even started a website for my daughter... PLEASE come join me there and share your story!!!!
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Thank You!! I, myself, do not have an autistic child. I have, however, followed her and her son's journey. Taking alternative routes in treatments etc. I am glad that there are some people out there who can think for themselves and base an opinion after getting all sides of the story. She IS a very good spokesperson about autism. I would love to have her on my team anytime. She DOES NOT back down. Yes, we have differing views about somethings, but we all have one thing in common. What is best for OUR children. Armchair DX, good way to describe it. Congratulations for looking for alternatives and being proactive. That is AWESOME you and your family have come this far for his treatment. =)
- harleymama30
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