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Update on Me, Multiple Sclerosis and Thanks to my girls!
- Feb 2, 2009 at 1:23 AM
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- Comments (4) Total Views (61) Everyone can see this journal post.
I just wanted to update everyone on what is going on with me and to thank everyone. First the update:
I spent 5 days in the hospital being loaded up with steroids and IV fluids. I had a spinal tap while I was there and it was confirmed that I do have MS. Justin was able to stay home with the kids and take care of them. He let his command know what was going on and they gave him a week emergency family leave I guess. I am not sure what it was called. But they have all been great and called this weekend to make sure everything was okay. I have some wonderful friends who sent me beautiful flowers and Mer came and saw me and brought me some lovely starbucks. I have been in a lot of pain and really stiff.
I was sent home with 9 prescriptions. Two of which are for the interfueron injections I am supposed to start next week. It will be 3 times a week but I cannot find the medicine anywhere. Come to find out the doctors office is supposed to call the company who manufactures the medicine and the company has a nurse come out, well they didn't call them. Now the doctor is moving offices and says they won't be able to get to calling the company for three more weeks. I was supposed to start on the meds this week and if I don't I may have to go for more steroids. So I am still trying to work that out.
Along with the pain comes weird like muscle twitches or spasms and weakness. I fell getting out of bed the first night I was home and broke two toes on my left foot. I am so clumsy nowadays. I scared the crud out of my husband. I was also on the lap top eating a bowl of cereal and had a spasm and spilled all over the lap top. Now it won't work. So we rented a laptop until we get our taxes back. I feel like I am a one woman wrecking team.
I fully realize by body has betrayed me and that is likely to continue but at the same time I am having memory problems and I can't stand it. I feel like my mind is betraying me too. I just want things to be better.
My mom is coming on Wednesday for two weeks. So hopefully I can get some of the appointments and such out of the way while she is here. Justin goes back to work tomorrow morning and I will be alone with the kids for the next few days. Please pray that I don't fall again, can get the medicine situation fixed and don't ruin anything else.
I wanted to thank everyone who has been praying for me. I appreciate it and can use all the prayers I can get. Also to Janet, Wes and Baby Jacob for the flowers. To all my Real Army Family ladies who sent me the beautiful flowers in the hospital. They really cheered me up. To Mer for coming to visit me and watching the kids so Justin could come. To Mer, Mel and Susan for brainstorming ways to find me a new doctor I really appreciate it.
For everyone else that has prayed for me. I thank you all. I am off to bed but will keep you all updated as I figure things out.
Comments:
I really hope you're able to get your medications and doctors all straightened out. I hope you have some neighbors you can rely on so if anything happens while you're home with the kids they have someone they can run to. Let me know if you need anything from Hawaii :)
You are in my prayers and will continue to be. Adam and I send our love! Hang in there hon!
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You and the family will continue to be in my thoughts and prayers, as always. You know that I am here for you if you need anything. I wish that I was less busy and could be there for you more than I am lately, but life has really sped up for me the past couple of weeks. However, regardless of how hectic things may be....if you need anything and I can help in any way please let me know.
- SusanD
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