I haven't really written a journal in a while, because I didn't have time, or much to say... but I have no one to talk to about this... so I guess a journal as good an option as staying silent.

My son doesn't poop. Like ever. He goes on average 2-3 weeks without going to the bathroom, and nothing seems to help. He's been like this since birth, first it was 3 days, then 5, 7, 9, etc.. now we're at 16 days.. right now.Before this is was about 24 days.He poops once a month. I guess to me it's normal because it's all I've ever known, but I know something's not right about this. There was a time when I was greatful he pooped only 4 times a month, now I would be greatful if he pooped at all.

The doctors (he sees 2 in the same practice) have told me everything under the sun. They told me it was because he was breastfed, they said he didn't drink enough water, or juice. They suggested we give him Miralax, mineral oil, glycerin suppositories, you name it we tried it. We now give him half a tablespoon a day of Miralax.. sometimes we skip a day by accident or something, but most of the time, he gets a full adult dose (18 years +) in a weeks time.. he often gets more than the adult dose. He also gets mineral oil, and juice and water etc. Still nothing.

Tomorrow we go for a barium enema and honestly I don't know if I can do it. They refuse to sedate him, and they said I'm not allowed to feed him anything (food or drink) within 6 hours prior to going. They also apparently strap them down in some cases, for a half hour. My husband thinks I'm silly for crying all day and being so worried... but I can't seem to bear the thought of having my toddler strapped down pleading for help and for me to pick him up and myself just standing there doing nothing. No one seems to have any experience in this, and I am seriously worried. I don't even want to go through with it, but I want the answers.How do you do something so horrible to get answers that you so desperately need?I know he's already uncomfortable.. adding more stuff to his belly isn't going to help him... everyone keeps saying this is somehow my fault.. I feel like a bad mom.


Update: We received a referral letter in the mail requesting a test for Hirschsprung's Disease. The letter also said the appointment was for THURSDAY.. not WEDNESDAY.. so at this point my husband is now FURIOUS because he took off Wednesday on last minute notice so he could be with us. Unfortunately I didn't realize this until 10:45 @ night.Lovely. So I called to confirm.. and yes the appointment is for Thursday, not Wednesday. So now my DH is has taken off work unneccessarily, and stayed up later assuming he wasn't headed to work tomorrow morning, and he thinks he'll be sent home because they rushed him to finish everything today.. so there will be little for him to do, and he may have to take off Thursday as well due to this mistake.He's EXTREMELY pissed at ME now.Great. And to top it all off I gave my son a HUGE dose of miralax in preperation for "tomorrow" and now he's going to poop all night long. Great. Never a dull moment. And now I'm completely paranoid that my son has Hirschsprung's disease, and I can't sleep.

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Feb. 3, 2009 at 4:38 PM

My daughter had to have a cat scan when she was 2, they gave her some stuff to relax her and let me stay in the room where I could talk to her, I just couldn't hold her. We practiced for days what was going to happen, I explained how she would have to lay still and how I wouldn't be able to hold her. I layed her on the kitchen table and pretended to run her through a "machine" we talked about what would happen and I was very upfront about what it was going to be like, she got use to the idea and did great. So I suggest you start talking to him about it now and try to ease any fears he will have later. My daughter had surgery and we did the same thing then, it seems to work well. Good luck!

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Feb. 3, 2009 at 5:01 PM

I've thought about doing that, but they didn't give me much notice unfortunately.My son is also only 19 months, and he doesn't talk. I'm not sure if he would understand me or not. My guess is not. I'm not even sure how I would explain it to him in terms he would understand. I knew they wanted to do this, I just didn't think it would be this soon. I was under the impression they wanted to wait a few months... so I was rather unprepared when they gave me 2 days notice.

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Feb. 3, 2009 at 9:54 PM

I'm sorry you guys have to go through this.  Once you have some "answers" you'll be able to relax a little...

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Feb. 4, 2009 at 12:09 AM

Oh hun!  I'm so sorry.  :(  I wish I could say something to make this go away.  YOU are not at fault.  You didn't do anything wrong.  Sometimes people just need someone to blame.  Don't let them make you feel bad.  You are doing what is best for your boy.  I hope you get some answers.  Get a second opinion if you can also.

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Feb. 5, 2009 at 9:13 AM

I understand your concerns. Aiden has been through many many tests and doctors visits due to his autism, especially before he was diagnosed. The hardest thing I have ever done in my whole life was one time when i had to take him to have some blood drawn for a dr when he was about 20 months old. It was the most terrible thing because I couldn't explain to him what was about to happen to him and he totally freaked out. They ended up having to strap him to a table to get his blood. He was surrounded by 4 strangers holding him down and he was screaming and spitting everywhere. With all of that said, if I had to do it again I would because it was necessary at the time to rule out a disease where you grow tumors all over your body and causes developmental delays. We needed those results. I think your situation is similar. My advice is to be strong for logan. He needs to get the tests done, and no he will not know what is happening to him but it will be ok. He is young and won't remember all of this soon. You just have to keep in mind that this is the right thing to do. Maybe they will find something that will be easily fixed and no more tests. You never know. Keep us up to date. I'd like to know how it goes. Be strong steph, and good luck.

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Apr. 12, 2012 at 1:32 PM

May I ask where you are at now with this?

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