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Parker MRI Update
- Feb 19, 2009 at 9:36 AM
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UPDATE - February 18, 2009 - Wow! It is hard to believe that Parker will be 6 months old next week. Things are going so well. She has already met her 8 month Sooner Start (Early Intervention) goal of being able to sit with assistance and hold her head up. She is a champ in her Bumbo. We are writing new goals more in line with her vision issue because she is almost caught up with the physical development aspects. Her head is still rather large (45 1/2 cm) and has dramatically changed shape. It used to be really wide and now it looks more like a "conehead". She is able to roll from side to side and has rolled from tummy to back a couple of times. This may not sound like a big deal, but when you consider the size of her noggin, it really is quite an accomplishment.
We work with her daily with a light box to help stimulate her vision. At this time she relies mostly on her hearing. Since introducing the box, she is able to track objects way more than she ever did before. We are so proud of her. There is no doubt that she will be visually impaired, but she is getting so much better! Maybe she will be able to drive after all???
Our latest joy is that she is able to transfer a toy from hand to hand. (and then she puts it in her mouth) I've heard this is early for her especially considering she is really only supposed to be 4 months old (corrected age - due date 10/15).
Parker had a MRI last week. She had to be sedated which caused me a little angst. Her NSG just wanted to see the progress in her brain development. I told my hubby that I didn't care what he had to say because she has been doing so well (infant forever, my ass). According to the NSG (direct quote), "The front part of her brain is NORMAL." I was shocked, and I think he was too. There is still fluid in her Occipital Lobe. He does not think this will drain further as it is taking up space for parts of her brain that did not bounce back. The Occipital lobe handles vision. We were already aware of her vision problems so this isn't new news. All in all we are totally pleased with the results.
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Sounds like you're getting great news. I'm not looking forward to Kynlee's CT in June for they may have to sedate her then....yuck! Thanks for the update and I continue to think about your family and pray for all of you!
- tlcforever
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