Neurosurgeon Progress Notes...

[NewTurtleMom]

UPDATE - March 4, 2009 - So I get the progress notes from the MRI and I have to share. Some of the NSG's wording is funny...

History of Present Illness: This little girl is being followed for a shunt. She had massive hydrocephalus. A shunt was placed at birth. She is now actually developing nicely.

Physical Examination: Her head circumference is 45 cm. She has a very dolichocephalic head with a towering occiput.

Review of Studies: Her MRI shows that her ventricles are actually decompressed nicely. She has an interhemispheric area, which I think is part of her ventricles suggesting that this is schizencephaly, at least posterior, but the front part looks much better. Overall, things look better.

Assessment and Plan: I would like to see them back in six months without imaging.

And, this is the letter he sent to our Pediatrician:

Dear Dr. Albiek,

Thank you for the opportunity to see Parker. She seems to be developing nicely. Her imaging confirms that her shunt is working well, and overall I think that she is doing better than anticipated. ....

I'm not sure what I expected, but I thought there would be more formality to the notes.

FYI, a dolichocephalic head with a towering occiput means she has a cone-shaped head that protrudes really far in the back. And, Schizencephaly is a "rare developmental disorder characterized by abnormal slits or clefts in the cerebral hemispheres." The prognosis for this condition is about the same as hydrocephalus - mental retardation, hemiparesis, quadriparesis, hypotonia, seizures and hydrocephalus (duh).

 

[redheadedmommie]

Mar. 4, 2009 at 4:42 PM

You never know how  a Dr is going to respond. As long as Parker is getting what she needs don't sweat it. I am glad sh e is doing better than they expected. Keep us posted!

[tlcforever]

Mar. 8, 2009 at 6:46 AM

We go wednesday.......keeping Parker in our thoughts!  We actually get to see the neurologist this time

[rowie2008momma]

Mar. 18, 2009 at 10:07 AM

Well that sounds like all good news right Amy? Awesome! I'm glad shes doing well, I think about her and still Pray for her all the time! :-)