I am a 27yr old Mother to 3 amazing kids. Brady is 8, Ashton is 4 and Ava is 9mo. I came to cafemom to get advice on other Mom's to special needs kids. My oldest son Brady was diagnosed when he was 2 with Spinal Muscular Atrophy Type II. I am sad every single day knowing that I am his Mother and I can't make him better. You grow up your whole life thinking your Mom can heal all. And to know that I can't....kills me. I am so tired of being angry. Angry at the Mother in the store that hits her child for crying. Angry at the parents that give their children away. Angry with women who smoke and drink during their pregnancy. I as a Mother do everything I can every single day to be a good Mom and I did while I was pregnant too. Sometimes I just don't get it and wonder if I ever will. I am tired of feeling this way. Does it ever get easier????
Comments:
It does get better when you realize the things you can control in this world: your feelings, thoughts and choices. You can't control what other people do with their children or their lives, just yours and your babies'. Be grateful for what you do have and try to find a little bit of sunshine in every day. Trust me, I'm not the super happy, shiny person, but when you have kids with challenges you have to do whatever you can to get through a day.
I believe in God.... but thats me. Things happen for a reason, that we might never understand here and now. It is difficult to understand why any child must suffer. I can understand as a Mom how difficult this must be for you! My nephew's son has SMA. They said he would not live to be one.... but April he will be going to the Dominican Republic for his third stem cell transplant. He is alive today and will be 3 in August. My oldest is expecting her second child. Now they test for SMA carriers when you are pregnant. She found out both her husband and herself are carriers. They recommened that her son, who is 2, be tested as well. She is going to wait until after this baby is born in May. She can only deal with one thing at a time. We worry every day what life will bring us.... but we have no control over it. We just pray we can met the challenges we face. You will be in my thoughts and prayers.
We will never understand why people harm thier children especially when there are so many people suffering either from the inability to get pregnant and wanting nothing more, or in your case from something we can't control. Its horrible to know that your baby can't be helped by you, that feeling that as a mother we should be able to protect them from anything, it has to be devasting for you. I am so sorry for the pain and suffering that you and your family have and are going to endure. You are in my thoughts and so is your son and the rest of your family. I wish you all the luck in the world and I will pray for you darling.
Already a member? Click here to log in


It get's easier knowing you are not alone in your frustration. Just remember, none of this was anything you did or didn't do. All I know is that I am glad that Brady was given a special mom like you to take care of him.
- chocolateroses
Message Friend Invite