Today is cerebral palsy awareness day ! This is a important day please take the time to read

[MOMMYTO5CUTIES]

My  daughter Lily is one of the 800,000 people living with  cerebral palsy ,currently there is no cure for cerebral palsy and research for cerebral palsy is severely underfunded .Living with cerebral palsy has its own challenges for each individual ,Some are only mildy affected  and others are so severely affected that they will need 24 hour care for the rest of their lives .Lily is 2.5 years old and she is able to pull up and crawl and go short distances using her gait trainer ,when she was officially diagnosed by the neuro she was not even able to roll over or crawl yet so now 15 months later she is making amazing progress .

Lily rose was born at 29 weeks and weighed 3lbs,1.4oz ,She spent 2 months in the NICU before coming home and at 7 months her peditrician said that lily had cerebral palsy and we had to go see a neurologist to confirm ,she has had so many tests and has alot of other issues from being premature but she is the happiest ,sweetest little girl and you cant help bugt be happy around Lily .She is on medication daily for her muscle stiffness and must go every 3-6 months to the orthopedic dr and get pianful botox injections in her legs ,we do this in the hopes that one day she will be able to wallk and stand on her own ,but she comes through it all with a smile .

Does this look like a baby who had 10 shots ?This was after her last botox injections this month and she got a total of 10 shots and shes still smiling !

Please take the time today to learn about cerebral palsy and read all the awareness journals ,everyone living with cerebral palsy will have itg for life ,Great progress can be made with therapy but it is a life long process ,I hope that one day we will get all the research funding that we need and progress will be made but for now there is only hope for a better future .

 Heres a link to the interview i did about lily for the baby buzz

http://www.cafemom.com/dailybuzz/baby/3835/Living_With_Lily_And_Cerebral_Palsy

[abdamorgan]

Mar. 25, 2009 at 10:20 AM

I have a 4 year old who has cerebral palsy.  He was born at 24 weeks at 1 pound 3.7 ounces.  Until I had him I knew nothing of Cerebral Palsy.  I hope your post helps to encourage people to learn and except those who have to struggle with Cerebral Palsy everyday. 

[do11face]

Mar. 25, 2009 at 10:39 AM

Lily is amazing! :)

[paddleballchris]

Mar. 25, 2009 at 1:05 PM

   ahhh she is so pretty!

[LYNDELOU]

Mar. 25, 2009 at 4:26 PM

Lily is an adorable little girl....And no she sure does NOT look like she just got 10 of those painful shots!!! .....OUCH poor little baby!

What a fighter she is... : )

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[newmomat47]

Mar. 26, 2009 at 2:15 AM

My heart goes out to Lily,I know that she will be the best! I myself was born with 10% of the athitoid state and had to drink this green medicine when I was young and had alot of speech therapy.

today I am 47 and unless you know what to look for you really cannot tell that I have it.

I have slurred speech,and also involuntary twitchs at times and am uncoordinated to this day!

I guess I would have to say that by people treating me as they would anyone else I was able to overcome alot of obstacles in my way.

Lilly is a beautiful child of god and she will do well in life she is special and was put on this earth to help others to be able to relate to her!