I'm just beyond pissed right now. I've been dealing with a lot of MS pain and spasticity for the past week. All the protection I had received from the pregnancy and nursing hormones is gone now that my youngest is weaned (as of last week). I'm in a ton of pain and absolutely miserable. Over the years, I've tried EVERY single drug on the market with either zero effectiveness or horrible side effects. I have an emergency appointment with my neurologist to see if I need to have a round of IV steroids and to discuss my pain management plan. As of now, I've been on narcotics. I'm sick of them. I'm sick of riding an hourly roller coaster where in hour one I'm high, hour two I'm energetic, hour three I'm starting to jones and hour four I'm despondant (is it obvious I'm in hour four right now?). This has been going on for years.

So in my quest to find something to bring to the table tomorrow, I dicovered Sativex, a liquid extract of (whole, not just THC) marijuana for pain and spasticity. It's been met with rave reviews and I was beyond excited, thinking that I had found the hope I'd been looking for....

It's not FDA-approved. I'm sitting here literally in tears. I'm at the end of my rope and beyond angry that the stigma and scare tactics foisted on us ALL is taking precious time away from my life. MY LIFE. I want to go outside and chase my baby around the yard, I want to walk to the local bakery and have a snack with my oldest. Instead, I'm here, in pain, frustrated to the point of despair at the enormity of just how wrong this is.

I don't really know the point of this post, other than to just put it out there to anyone who thinks medical marijuana and legalization is a sham and just an excuse to use illicit drugs, that it isn't. It isn't! It's NOT RIGHT that I can't have access to effective pain relief, that I'm relegated to a quality of life that is one notch above survival. I didn't ask for MS, I didn't do anything to cause it, so for fuck's sake, let me have some fucking medicine to at least make that reality livable. Because, in all honesty, this is NO way to live and it's so wrong that I have to because of bureaucratic BULLSHIT.

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Comments:

Mommy...
Mar. 31, 2009 at 6:13 PM

I am on your side. I can't believe that people turn a blind eye to the benefits medical marijuana can have for people with MS, glaucoma, eating disorders, etc. It's a plant whose potential is far underestimated by most of society. I hope you can find a solution for your pain. I had a teacher in high school with MS. I found out years later that she smokes marijuana to keep her symptoms (somewhat) under control. She's a mom, too. I can't say I blame her...if it helps her to function and take care of her son, then why not? Good luck with your neurologist appointment.

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Friday
Mar. 31, 2009 at 6:18 PM

I'm sorry for what you are going thru. I'm going to let my friends know about this journal so we can make it popular and spread the word.

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anziomom
Mar. 31, 2009 at 6:26 PM

I feel ya momma...If at all possible you should look into moving to a state that will allow you to fight your pain in such a natural manner. Best wishes, stay strong and keep the hope!

Def got my popular vote, Thanks for the heads up Friday!

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Woodbabe
Mar. 31, 2009 at 6:41 PM

Friday sent me....bumping your popularity for you! I'm sorry you're going through this!

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Gemmi280
Mar. 31, 2009 at 8:22 PM

thank you Friday for sending me too....i agree that you should look into moving to a state that allows medical mj use, easier said than done, i know. if you'd like to have information or support from other mothers who feel the same way you do, check out MOMSLOM here on cafe mom!

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auror...
Mar. 31, 2009 at 8:33 PM

Saw this in MOMSLOM and voting you UP!  I'm so sorry that you're going through this but your message is an important one. 

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sweet...
Mar. 31, 2009 at 8:34 PM

I'm with you, I'm sorry you feel so miserable. Stupid FDA.

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MaMaL...
Mar. 31, 2009 at 8:46 PM

Friday sent me too from MOMSLOM. i am so sorry you have to live with this pain and the roller coaster of being dependent on those painkillers. it is no way for anyone to live. there are many of us fighting to get medicinal marijuana legalized in all 50 states so that mothers like you can enjoy your life and your children.

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KC33
Mar. 31, 2009 at 9:21 PM

I support you and your right to treat your medical condition in any manner you desire.

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Booth...
Mar. 31, 2009 at 9:31 PM

Sorry to hear you are in such pain. I have a question though, Just because it's not FDA approved does not mean you can't still get it with a Doc's prescription Right?? I ask because I have Gastroparesis and am about to start Domperidone which is not FDA approved but I can still get it from another country with Prescription, Legally. Just wandered if this was the same way. I say it's dumb for MJ to not be legal, I think Cigs are worse and I know Alcohol is, so why not?

I will be routing for you girl to get the med you need.

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