What I'm doin now...at All Childrens Hospital. UPDATED IN BLUE, NEW (& LAST) UPDATE IN RED

[babymomma0306]

Well here I sit bored outta my mind. I'm at all children's hospital while Asher gets his mobile EEG and then his sleep study tonight. We drove for about 3 hours got here at 2p.m. and they put the little wires on his head. Now we just play at the Ronald McDonald house until 8p.m. when we go back to to the hospital and then stay the night there while they watch him sleep with cameras all night. Daddy and Phoenix will stay here at the r.m.d. house tonight. there now starting to get cranky,well Phoenix is really bad..Asher's not as grumpy. he having this test done because he has severe night terrors. Without medicine they start about 11p.m. and don't end until around 5-6 a.m. He will scream kick cry and even walk around  for hours and you can't get him to wake up. With medicine it's not every night but they still happen so there doing this test. Here's some pictures of the day so far...

He softly cried the first few wires then he realized it didn't hurt so he just chilled out and watched t.v. while they finished.

Having a snack.

carrying around his battery pack.

Phoenix playing baseball.

Here's a squirrel that was standing under leaves nearby and he looked like he was wearing a hat *LOL*!

Heelllooooooooooooooooooooooooooo?!!!?

 

Well, that's it for know. I'll try to update this tomorrow.

oK, IT'S AROUND 7A.M. NOW and he's done. I couldn't update ya'll earlier because he was freakin' out last night. Once we got to the sleep lab they had to wires in his face, by his eyes. Then they put TWO different things up his nose. One thing over the top of his mouth. These were to measure his oxygen in take and carbon output, to make sure he takes in enough o2 and breaths out all the carbon dioxide. The had heart monitors on his chest.And monitors on his legs and back. He kept crying and saying he was scared and mommy I want to go home! I wasn't allowed to lay down with him so I spent a couple hours sitting in a chair in the dark sitting next to him holding his hand until he finally fell asleep around 1:30 a.m. I thought it was odd that they wanted him to have his "night terror medicine"  when they were wanting to monitor his terrors but they did. Normally I would be praying that he didn't have a night terror that night but I was glad that even with the medicine he still had two breakthrough ones. Granted they lasted less then a minute (w/o med. it would last from about 11p.m.-5a.m.) but at least they had a little something to document. it was upsetting to me though because they wouldn't let me o over and comfort him because even though he was screaming he was asleep and they wanted to watch him and me not try to wake him. About 6a.m. they got him up and pulled, scrubbed, and washed the glue off his hair. We are now back at the r.m.d. house. They let you stay for $10 a night but in exchange everyone has a chore. We have to clean all the window sills and completely clean our room and bathroom. So we're gonna clean and wash the bedsheets and then leave. We make take them to a park or something to walk around for a while or maybe the pier. Then we have a lovely 3 hour drive home *LOL*!!! I'll come back later and update some more and maybe post some pictures of what we did before we left for home.

Alright, so we're home now, Thank You God!!! I didn't take any pictures of him at the sleep lab with extra stuff because he was just to upset and just wanted me to hold his hand. Today he made some friends at the ronald mcdonald house who had siblings in the hospital so we hung out there and let him play for a little bit. Then we took him down to the pier because for his treat for being good he wanted to, "feed the birds and see the fish", so that's where we went. A bucket of fish is $5 and they were free for the small upstairs aquarium they only charged for me which was also $5. He has some red spots on his checks and by his eyes from all the wires and tubes on his face last night but other then that and being extra cuddly he seems fine. Here's a few pics of the pier...

feeding the birds

Dancing in 80mph wind in the hurricane tunnel *LOL*

Fish @ aquarium looks like he's ready to pucker up *LOL*

peek-a-boo!

The kids made sure mommy got a million pictures of "Nemo".

Asher and daddy

Just chillin' with chocolate on his face!

Mmmmmm candy!

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Oh sure, now he'll sleep *LOL*! This is a toy the R.M.D. house sent them home with (to share) for being good ;-)

you can see the red streaks on his face a little in this picture, but the longer it's been the bigger and darker they've been getting :-(

------------------------------------------------------------Anyway that was are eventful two days of insanity. Thank you to those of you who left comments!

PLEASE VOTE THIS POPULAR so that maybe a mom who's child has the same problems will come across this and contact me with some advice and what medication worked for her kid. This has been going on for about 3 years now and all the meds. he's tried improve it but doesn't make it completely stop. THANK YOU VERY MUCH!!!

[Momma_Halo]

Apr. 20, 2009 at 8:06 PM

Awww poor little guy!

[Lb128f]

Apr. 20, 2009 at 8:10 PM

Thanks for the update!! I'm sorry you are bored...but, what a wonderful thing to be able to say while at a Children's Hospital!! :-) It looks like everyone is having fun and that Asher did GREAT while they put the leads on, YAY!!! Now...if he will just sleep...LOL!! Good Luck!!! Let us know how it goes, okay?

[coffeedrinke817]

Apr. 20, 2009 at 8:27 PM

Glad you updated us on what was happening! Looks like your little guy is being a real trooper,glad you were able to stay in the RMH,makes it that much easier then having to shell money out as your worrying about your boy!Hope they get the issue figured out for ya!

[Lb128f]

Apr. 21, 2009 at 10:27 AM

Thanks for the update!! Glad that's over with...I'm sorry it was a rough night! And, sorry you have to clean, ugh! :( Hope you can have some fun before the drive home!

[mmunoz]

Apr. 21, 2009 at 9:57 PM I hope everything goes well for your son! I know that has to be stressful for the whole family. When my daughter was born 7 months ago, she was at All Children's and they were really great. We stayed at the same RMD house. One of the squirrels only has 3 legs but jumps around everywhere. It was pretty crazy lol.

[averillholistix]

Apr. 22, 2009 at 3:19 AM

a) WHAT A FREAKIN HUGE PELICAN!!! LOL

 and

b) You deserve a BEST MOMMY IN THE WORLD award. YOU ROCK.

[LYNDELOU]

Apr. 22, 2009 at 3:21 AM

Wow girl what a couple of rough days you all had...BUT on a positive note all the pictures look like everyone is okay!

I am glad to read the up-date.....Sorry it took me so long...I laid down and feel off to sleep....

Hopefully they call you with some kind of results soon and that your son is able to sleep without these terrible episodes...

Love And Hugs My Sweet Friend....Hugs those precious boys for me!

[LYNDELOU]

Apr. 22, 2009 at 3:22 AM

[babymomma0306]

Apr. 22, 2009 at 4:45 AM

Hopefully they call you with some kind of results soon and that your son is able to sleep without these terrible episodes...

LYNDELOU

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They have to have a few different specialist look over it so it'll take 3-4 weeks before we have to drive all the way there again to see the pediatric neurologist!!! I hope they figure it out, he's been having them since e was around 2 years old!

(Original Poster)

[Lb128f]

Apr. 22, 2009 at 6:20 AM

Thanks for updating! Great pics!! I'll be saying a prayer they can figure it all out for you!